Department of Science and Research , Lung Cancer Alliance , Washington , DC , USA.
Department of Support Initiatives , Lung Cancer Alliance , Washington , DC , USA.
J Psychosoc Oncol. 2019 Sep-Oct;37(5):573-585. doi: 10.1080/07347332.2019.1569191. Epub 2019 Feb 23.
: Historically, long-term survival following diagnosis of lung cancer has been a rare occurrence. An overall poor prognosis and the low likelihood of long-term survival are thought to precipitate survivors experiencing what is referred to as survivor guilt. This study explored the prevalence and nature of survivor guilt among lung cancer survivors. : Lung cancer survivors ( = 108) completed an online survey through a national organization's online community platform. This survey included a commonly used measure of survivor guilt targeting lung cancer and a single item that asked about whether they had experienced survivor guilt associated with lung cancer. Additionally, survivors were asked to provide open-ended descriptions of survivor guilt. In-depth thematic analysis was used to analyze these in-depth responses from those with the highest guilt scores on the survey measure (top quartile). : Survey responses revealed a majority of study respondents endorsed survivor guilt with 55% reporting an experience of survivor guilt associated with lung cancer. In addition, 63.9% of respondents scored above the mean on the survivor guilt scale. Qualitative analysis revealed five recurring themes among respondents with the highest survivor guilt scores (top quartile): 1) mentioning the death of others, 2) questioning "why not me?" 3) the role of the passage of time on emotions experienced, 4) the role of demographic and clinical characteristics' on survivor guilt, and 5) strategies for coping with survivor guilt. : This study identifies survivor guilt in lung cancer survivors and raises clinical awareness that managing survivor guilt is a psychosocial challenge for lung cancer survivors. Results highlight the need for addressing this critical issue.
: 从历史上看，肺癌确诊后的长期生存一直是罕见的。总体预后不良和长期生存的可能性低，被认为是导致幸存者出现所谓的幸存者内疚感的原因。本研究探讨了肺癌幸存者中幸存者内疚感的流行情况和性质。: 肺癌幸存者（ = 108）通过一个全国性组织的在线社区平台完成了在线调查。该调查包括一项针对肺癌的常用幸存者内疚感测量工具，以及一项询问他们是否经历过与肺癌相关的幸存者内疚感的单项问题。此外，幸存者被要求提供关于幸存者内疚感的开放式描述。使用深入的主题分析对调查测量得分最高（前四分之一）的那些人的深入回复进行分析。: 调查结果显示，大多数研究参与者都认可幸存者内疚感，其中 55%的人报告说经历过与肺癌相关的幸存者内疚感。此外，63.9%的受访者在幸存者内疚感量表上的得分高于平均值。定性分析揭示了得分最高的受访者（前四分之一）中的五个反复出现的主题：1）提到他人的死亡，2）质疑“为什么不是我？”3）时间流逝对所经历情绪的影响，4）人口统计学和临床特征对幸存者内疚感的作用，以及 5）应对幸存者内疚感的策略。: 本研究在肺癌幸存者中确定了幸存者内疚感，并提高了临床意识，即管理幸存者内疚感是肺癌幸存者面临的一个心理社会挑战。结果强调了解决这一关键问题的必要性。
