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美国银屑病患者的耻辱感应激经历。

Experiences of Stigma-Stress among People Living with Psoriasis in the United States.

作者信息

Parkhouse Alex R

机构信息

Department of Sociology, University of Maryland, College Park, MD;, Email:

出版信息

Am J Health Behav. 2019 Mar 1;43(2):243-257. doi: 10.5993/AJHB.43.2.2.

DOI:10.5993/AJHB.43.2.2
PMID:30808465
Abstract

Stigma and stress affect multiple domains of life among stigmatized people. However, although both stigma research and stress research advance, more can be done to connect these 2 important lines of sociological inquiry. To address this gap, 23 semi-structured interviews were conducted with study participants in the United States to examine the daily lived experiences of stigma-stress among people living with psoriasis. A grounded theory approach was employed in the analyses of participant narratives. Findings uncover ways that anticipated and experienced stigma contribute to burdensome feelings of "being different" and reveal how stigma-stress proliferates, affecting daily functioning of participants and their family and intimate networks. Findings indicate chronicity of stigma-stress experienced by participants is shaped by access to and utilization of personal and social resources. These findings contribute to stigma and stress literature, elucidating the conceptual and practical implications of a stigma-stress nexus experienced daily by those living with a chronic skin condition.

摘要

耻辱感和压力会影响受污名化人群生活的多个领域。然而,尽管耻辱感研究和压力研究都在不断推进,但在将这两条重要的社会学研究线索联系起来方面仍有更多工作可做。为了填补这一空白,我们对美国的研究参与者进行了23次半结构化访谈,以考察银屑病患者耻辱 - 压力的日常生活经历。在对参与者叙述的分析中采用了扎根理论方法。研究结果揭示了预期的和经历的耻辱感如何导致“与众不同”的沉重感受,并揭示了耻辱 - 压力是如何扩散的,影响参与者及其家庭和亲密关系网络的日常功能。研究结果表明,参与者所经历的耻辱 - 压力的长期性是由个人和社会资源的获取与利用所塑造的。这些研究结果为耻辱感和压力文献做出了贡献,阐明了慢性皮肤病患者每天所经历的耻辱 - 压力关系的概念和实际意义。

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Experiences of Stigma-Stress among People Living with Psoriasis in the United States.美国银屑病患者的耻辱感应激经历。
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Front Med (Lausanne). 2023 May 16;10:1075672. doi: 10.3389/fmed.2023.1075672. eCollection 2023.
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The utility of PROMIS domain measures in dermatologic care.PROMIS 量表在皮肤科护理中的应用。
Arch Dermatol Res. 2021 Jan;313(1):17-24. doi: 10.1007/s00403-020-02074-1. Epub 2020 Apr 8.