银屑病患者的生活质量：一项定性研究。
Quality of life of patients living with psoriasis: a qualitative study.
机构信息
Department of Nursing, Botucatu Medical School, Paulista State University, São Paulo, Brazil.
Department of Dermatology, Botucatu Medical School, Paulista State University, São Paulo, Brazil.
出版信息
BMC Dermatol. 2020 Dec 10;20(1):22. doi: 10.1186/s12895-020-00116-9.
BACKGROUND
Psoriasis is a multifactorial inflammatory disease prevalent in dermatology. We aimed to understand the perceptions of patients living with psoriasis in relation to their quality of life and to identify aspects to improve it.
METHODS
This is qualitative research carried out in a dermatology outpatient clinic of the São Paulo State University (UNESP) medical school, Botucatu, Brazil, with 81 psoriasis patients. The interviews were transcribed and analysed using the Discourse of the Collective Subject method (DCS).
RESULTS
Quality of life was linked to well-being, happiness, leisure, good food and financial stability. However, disease symptoms, social and clothing restrictions, impairment of professional activities and the absence of a cure, negatively influenced their perceptions. Suggestions for improvements included an increase of public awareness, stress reduction, disease acceptance and multidisciplinary care.
CONCLUSION
The meanings of quality of life revealed by the participants are subjective, multidimensional, linked to moments experienced by them and to the health-disease process. Public health policies promoting reduction in social stigma and stress as well as multidisciplinary approaches towards care can contribute to improvements of QoL in psoriasis.
背景
银屑病是一种常见于皮肤科的多因素炎症性疾病。我们旨在了解银屑病患者对生活质量的看法，并确定改善生活质量的方面。
方法
这是在巴西圣卡塔琳娜州立大学（UNESP）医学院博图卡图皮肤科门诊进行的定性研究，共纳入 81 名银屑病患者。访谈记录转录后，采用集体主体话语方法（DCS）进行分析。
结果
生活质量与幸福感、快乐、休闲、美食和经济稳定有关。然而，疾病症状、社会和着装限制、职业活动受损以及缺乏治愈方法，对他们的认知产生了负面影响。改善的建议包括提高公众意识、减轻压力、接受疾病和多学科护理。
结论
参与者所揭示的生活质量的意义是主观的、多维的，与他们所经历的时刻以及健康-疾病过程有关。促进减少社会耻辱感和压力的公共卫生政策以及多学科护理方法有助于改善银屑病患者的生活质量。
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