1 Marie Curie Palliative Care Research Department, Division of Psychiatry, University College London, London, UK.
2 Centre for Research in Primary and Community Care, University of Hertfordshire, Hatfield, UK.
Palliat Med. 2019 Apr;33(4):415-429. doi: 10.1177/0269216319834227. Epub 2019 Mar 11.
A challenge for commissioners and providers of end-of-life care in dementia is to translate recommendations for good or effective care into quality indicators that inform service development and evaluation.
To identify and critically evaluate quality indicators for end-of-life care in dementia.
We found 8657 references, after de-duplication. In all, 19 publications describing 10 new and 3 updated sets of indicators were included in this review. Ultimately, 246 individual indicators were identified as being relevant to dementia end-of-life care and mapped against EAPC guidelines.
We systematically derived and assessed a set of quality indicators using a robust framework that provides clear definitions of aspects of palliative care, which are dementia specific, and strengthens the theoretical underpinning of new complex interventions in end-of-life care in dementia.
痴呆症终末期护理的管理者和提供者所面临的一个挑战，是将优质或有效护理的建议转化为质量指标，从而为服务的发展和评估提供信息。
确定并批判性评估痴呆症终末期护理的质量指标。
去重后，我们共检索到 8657 篇参考文献。本综述共纳入了 19 篇文献，描述了 10 组新的和 3 组更新的指标集。最终，共确定了 246 个与痴呆症终末期护理相关的个体指标，并根据 EAPC 指南进行了映射。
我们使用一个强大的框架系统地推导出和评估了一组质量指标，该框架对姑息治疗的各个方面提供了明确的定义，这些方面是痴呆症特有的，并且增强了新的痴呆症终末期护理复杂干预措施的理论基础。
