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本文引用的文献

1
Improving CKD-Specific Patient-Reported Measures of Health-Related Quality of Life.改善慢性肾脏病患者报告的健康相关生活质量测量指标。
J Am Soc Nephrol. 2019 Apr;30(4):664-677. doi: 10.1681/ASN.2018080814. Epub 2019 Mar 21.
2
Kidney Disease Quality of Life 36-Item Short Form Survey (KDQOL-36) Normative Values for the United States Dialysis Population and New Single Summary Score.肾脏病生活质量 36 项简明量表调查（KDQOL-36）美国透析人群的常模值和新的单一综合评分。
J Am Soc Nephrol. 2019 Apr;30(4):654-663. doi: 10.1681/ASN.2018100994. Epub 2019 Mar 21.
3
Patient-Reported Outcome Instruments for Physical Symptoms Among Patients Receiving Maintenance Dialysis: A Systematic Review.接受维持性透析患者身体症状的患者报告结局工具：一项系统评价
Am J Kidney Dis. 2015 Dec;66(6):1033-46. doi: 10.1053/j.ajkd.2015.05.020. Epub 2015 Jul 23.
4
Measure once, cut twice--adding patient-reported outcome measures to the electronic health record for comparative effectiveness research.一次测量，两次裁剪——为比较疗效研究在电子健康记录中添加患者报告的结果测量。
J Clin Epidemiol. 2013 Aug;66(8 Suppl):S12-20. doi: 10.1016/j.jclinepi.2013.04.005.
5
Trajectories of illness in stage 5 chronic kidney disease: a longitudinal study of patient symptoms and concerns in the last year of life.5 期慢性肾脏病患者的疾病轨迹：对患者生命最后一年症状和关注点的纵向研究。
Clin J Am Soc Nephrol. 2011 Jul;6(7):1580-90. doi: 10.2215/CJN.09021010. Epub 2011 Jun 16.
6
What 'patient-centered' should mean: confessions of an extremist.以患者为中心应该意味着什么：一个极端主义者的自白。
Health Aff (Millwood). 2009 Jul-Aug;28(4):w555-65. doi: 10.1377/hlthaff.28.4.w555. Epub 2009 May 19.
7
The use of patient reported outcome measures in routine clinical practice: lack of impact or lack of theory?患者报告结局指标在常规临床实践中的应用：是缺乏影响还是缺乏理论？
Soc Sci Med. 2005 Feb;60(4):833-43. doi: 10.1016/j.socscimed.2004.06.022.
8
Developing a health-related quality-of-life measure for end-stage renal disease: The CHOICE Health Experience Questionnaire.开发一种针对终末期肾病的健康相关生活质量测量方法：选择健康体验问卷。
Am J Kidney Dis. 2001 Jan;37(1):11-21. doi: 10.1053/ajkd.2001.20631.
9
Development of the kidney disease quality of life (KDQOL) instrument.肾病生活质量（KDQOL）量表的研制。
Qual Life Res. 1994 Oct;3(5):329-38. doi: 10.1007/BF00451725.
10
The possibilities of patient-centered medicine.以患者为中心的医学的可能性。
J R Coll Gen Pract. 1969 May;17(82):269-76.

Patient-Reported Outcomes: Toward Better Measurement of Patient-Centered Care in CKD.

作者信息

Wu Albert W, Predmore Zachary S

机构信息

Department of Health Policy and Management, Bloomberg School of Public Health, Johns Hopkins University, Baltimore, Maryland

Department of Health Policy and Management, Bloomberg School of Public Health, Johns Hopkins University, Baltimore, Maryland.

出版信息

J Am Soc Nephrol. 2019 Apr;30(4):523-525. doi: 10.1681/ASN.2019020169. Epub 2019 Mar 21.

DOI:10.1681/ASN.2019020169
PMID:30898869
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6442338/
Abstract
摘要