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多发性硬化症患者在工作场所经历的微侵犯:使用 Sue 的分类法进行的探索性研究。

Microaggressions experienced by people with multiple sclerosis in the workplace: An exploratory study using Sue's taxonomy.

机构信息

Department of Psychology.

出版信息

Rehabil Psychol. 2019 May;64(2):179-193. doi: 10.1037/rep0000269. Epub 2019 Mar 25.

DOI:10.1037/rep0000269
PMID:30907614
Abstract

PURPOSE

Microaggressions are subtle forms of discrimination and include verbal, nonverbal, or environmental slights that convey disparaging messages to people based upon their group membership, such as disability. The purpose of this study was to investigate the experience of microaggressions in the workplace among individuals with multiple sclerosis (MS).

METHOD

This study used a community-based participatory research approach and qualitative design. Adults with MS (N = 29) with current or recent work experience were recruited to participate in a focus group study. Eight focus groups were conducted and transcripts analyzed using qualitative content analysis to generate themes and subthemes. Study protocol, coding, and interpretations underwent a validity check by an external advisory group consisting of researchers in the field and individuals with MS.

RESULTS

Almost all of the participants in this study reported experiencing some form of microaggressions in their workplace. Several important themes emerged, including pathologizing, assumption of disability status, second-class, lack of awareness, social distance, and denial. This study also found that perceived stress was associated with microaggressions and that microaggression exacerbated the negative impact of uncertainty related to symptoms and job security. Participants also identified various coping strategies used to deal with microagressions, such as involvement in support groups and meditation.

IMPLICATIONS

The themes that emerged from the focus groups further our understanding of microaggressions as a factor impacting the work experiences of people with MS. Findings have implications for rehabilitation practitioners and future research to promote work life, job retention, and well-being of people with MS. (PsycINFO Database Record (c) 2019 APA, all rights reserved).

摘要

目的

微侵犯是歧视的一种微妙形式,包括言语、非言语或环境上的怠慢,这些怠慢根据人们的群体成员身份向他们传达贬低性信息,例如残疾。本研究的目的是调查多发性硬化症(MS)患者在工作场所中遭受微侵犯的经历。

方法

本研究采用了基于社区的参与式研究方法和定性设计。招募了具有当前或近期工作经验的多发性硬化症患者(N=29)参加焦点小组研究。共进行了 8 次焦点小组讨论,并使用定性内容分析对转录本进行分析,以生成主题和子主题。研究方案、编码和解释由一个由该领域的研究人员和多发性硬化症患者组成的外部咨询小组进行有效性检查。

结果

本研究几乎所有参与者都报告在工作场所经历过某种形式的微侵犯。出现了几个重要主题,包括病理化、假设残疾状况、二等公民、缺乏意识、社会距离和否认。本研究还发现,感知到的压力与微侵犯有关,微侵犯加剧了与症状和工作保障相关的不确定性的负面影响。参与者还确定了各种用于应对微侵犯的应对策略,例如参与支持小组和冥想。

意义

焦点小组中出现的主题进一步加深了我们对微侵犯作为影响多发性硬化症患者工作经历的一个因素的理解。研究结果对康复从业者和未来的研究具有重要意义,有助于促进多发性硬化症患者的工作生活、保留工作和幸福感。

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