Department of Internal Medicine, Sourô Sanou University Teaching Hospital, Bobo-Dioulasso, Burkina Faso; INSERM, University of Limoges, CHU Limoges, UMR_S 1094, Tropical Neuroepidemiology, Institute of Neuroepidemiology and Tropical Neurology, F-87000 Limoges, France.
Department of Veterinary Medicine and Public Health, Sokoine University of Agriculture, Morogoro, Tanzania.
Epilepsy Behav. 2019 Jun;95:70-74. doi: 10.1016/j.yebeh.2019.03.006. Epub 2019 Apr 24.
The objective of this study was to assess knowledge, beliefs, attitudes, and practices regarding epilepsy and neurocysticercosis in the rural areas of Burkina Faso.
The interviews were designed to assess general perception of epilepsy, cultural beliefs and practices regarding epilepsy and people with epilepsy (PWE), and knowledge about the link between human epilepsy and porcine cysticercosis. This qualitative study used in-depth interviews with different categories of community members, including PWE, healthcare providers (HCPs), and traditional healers in three villages in rural Burkina Faso.
All respondents showed a good knowledge of epilepsy symptoms but very little knowledge on causes of the disease. In this community, epilepsy was often associated with witchcraft (commonly termed "black magic"). People with epilepsy were marginalized and denied certain rights such as school education and marriage. They also relied mainly on traditional medicine with a prominent role played by traditional healers. While medical personnel knew that controlling seizures would depend on the cause, the traditional healers reported to be able to cure all kinds of epilepsy as long as the patient adhered to taboos. The main "treatments" prescribed by traditional healers were to stay away from fire and refrain from pork consumption. Pork fat was believed to reduce the effectiveness of the traditional medicine.
For effective monitoring and management of epilepsy in Burkina Faso, there is a need to promote better knowledge of the disease in the community, including HCPs, and traditional healers.
本研究旨在评估布基纳法索农村地区民众对癫痫和脑囊尾蚴病的认知、信念、态度和实践。
访谈旨在评估对癫痫的总体认知、对癫痫和癫痫患者(PWE)的文化信仰和实践,以及对人类癫痫与猪囊尾蚴病之间关联的了解。这项定性研究使用深入访谈的方法,对布基纳法索农村地区的三个村庄中的不同类别的社区成员(包括 PWE、医疗保健提供者(HCPs)和传统治疗师)进行了访谈。
所有受访者对癫痫症状都有很好的了解,但对疾病的病因知之甚少。在这个社区,癫痫常常与巫术(通常称为“黑魔法”)有关。癫痫患者被边缘化,被剥夺了某些权利,如接受教育和结婚。他们主要依赖传统医学,传统治疗师发挥着重要作用。尽管医务人员知道控制癫痫发作将取决于病因,但传统治疗师报告说,只要患者遵守禁忌,他们就能治愈各种癫痫。传统治疗师开出的主要“治疗方法”是远离火和避免食用猪肉。他们认为,猪油会降低传统药物的疗效。
为了在布基纳法索有效监测和管理癫痫,需要提高社区(包括 HCPs 和传统治疗师)对该疾病的认识。