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阐明“有意义的”患者参与健康服务规划和设计的程度、模式和困惑。

Clarifying the degrees, modes, and muddles of "meaningful" patient engagement in health services planning and designing.

机构信息

Institute of Health Policy, Management, and Evaluation, University of Toronto, Canada; Toronto General Research Institute, University Health Network, Toronto, Canada.

Institute of Health Policy, Management, and Evaluation, University of Toronto, Canada; Toronto General Research Institute, University Health Network, Toronto, Canada; Department of Surgery, University of Toronto, Canada; Institute of Medical Science, University of Toronto, Canada.

出版信息

Patient Educ Couns. 2019 Sep;102(9):1581-1589. doi: 10.1016/j.pec.2019.04.006. Epub 2019 Apr 21.

DOI:10.1016/j.pec.2019.04.006
PMID:31053247
Abstract

OBJECTIVES

Patient engagement has become the expectation around the world in an array of healthcare activities. There is an emerging need to improve the mechanisms and approaches to engaging patients. Previous research has found variation in the terms used to describe PE, which may inhibit the usefulness and impact of tools developed to improve PE. The objective of this review was to investigate how studies have conceptualized and differentiated between degrees of engagement in planning and designing of health services.

METHODS

This review conducted a database search for studies on PE in planning and designing health services, which were analyzed using the qualitative meta-synthesis approach.

RESULTS

The descriptive characteristics and the terms used to depict PE were analyzed in 18 studies. A synthesis for the following terms are provided: collaboration, cooperation, co-production, active involvement, partnership, and consumer and peer leadership. Similarities and differences between these terms and with frameworks of engagement are discussed.

CONCLUSION

This review found various conceptualizations of terms that depict meaningful PE that practitioners can use to develop their own conceptualizations match the context of an activity.

PRACTICE IMPLICATIONS

Joint training between patients and healthcare professionals may address variations in the language, goals, and purposes of engagement.

摘要

目的

在各种医疗保健活动中,患者参与已成为全球的期望。人们越来越需要改进吸引患者的机制和方法。先前的研究发现,用于描述 PE 的术语存在差异,这可能会影响用于改善 PE 的工具的实用性和影响力。本研究的目的是调查研究如何在规划和设计卫生服务时对参与程度进行概念化和区分。

方法

本综述对规划和设计卫生服务中关于 PE 的研究进行了数据库检索,使用定性荟萃综合方法对这些研究进行了分析。

结果

对 18 项研究的描述性特征和用于描述 PE 的术语进行了分析。提供了以下术语的综合描述:协作、合作、共同生产、积极参与、伙伴关系以及消费者和同行领导。讨论了这些术语与参与框架之间的异同。

结论

本综述发现,用于描述有意义的 PE 的术语存在多种概念化,从业者可以使用这些术语来发展自己的概念化,以匹配活动的背景。

实践意义

患者和医疗保健专业人员之间的联合培训可能会解决参与的语言、目标和目的方面的差异。

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