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充耳不闻:法国临床伦理委员会的定性研究

Falling on deaf ears: a qualitative study on clinical ethical committees in France.

作者信息

Dekeuwer Catherine, Bogaert Brenda, Eggert Nadja, Harpet Claire, Romero Morgane

机构信息

Faculté de Philosophie, Institut de Recherches Philosophiques de Lyon, Université Jean Moulin, 18 rue Chevreul, 69007, Lyon, France.

Chaire Valeurs du Soin Centré Patient, Institut de Recherches Philosophiques de Lyon, Université Jean Moulin, 18 rue Chevreul, 69007, Lyon, France.

出版信息

Med Health Care Philos. 2019 Dec;22(4):515-529. doi: 10.1007/s11019-019-09907-5.

DOI:10.1007/s11019-019-09907-5
PMID:31147810
Abstract

The French medical context is characterized by institutionalization of the ethical reflection in health care facilities and an important disparity between spaces of ethical reflection. In theory, the healthcare professional may mobilise an arsenal of resources to help him in his ethical reflection. But what happens in practice? We conducted semi-structured interviews with 22 health-care professionals who did and did not have recourse to clinical ethical committees. We also implemented two focus groups with 18 professionals involved in various spaces of ethical reflection in order to let them debate about a better way to organize ethical reflection in their institutional contexts. The qualitative analysis allows to us to underline the coexistence of different conceptions of ethics among health care professionals. We also observed that the participants in our study shared the experience of ethically problematic situations as roadblocks in the process of communication and decision-making. We therefore report the factors which favour or inhibit the ethical course leading to the resolution or at the very least soothing of the situation at hand. Finally, we discuss methodological issues and underline the fact that while the patient is at the heart of the professional's ethical preoccupations, this does not imply that they are actors in decisions that concern them.

摘要

法国的医疗环境特点是医疗保健机构中伦理反思的制度化,以及伦理反思空间存在重大差异。理论上,医疗保健专业人员可以动用一系列资源来辅助其进行伦理反思。但实际情况如何呢?我们对22名曾求助和未曾求助于临床伦理委员会的医疗保健专业人员进行了半结构化访谈。我们还与18名参与不同伦理反思空间的专业人员开展了两个焦点小组讨论,以便让他们就如何在其机构环境中更好地组织伦理反思展开辩论。定性分析使我们能够强调医疗保健专业人员中不同伦理观念的共存。我们还观察到,我们研究中的参与者都经历过伦理问题情境,这些情境成为沟通和决策过程中的障碍。因此,我们报告了有利于或阻碍道德进程的因素,这些因素可导致解决或至少缓解当前的情况。最后,我们讨论了方法学问题,并强调了这样一个事实,即虽然患者是专业人员伦理关注的核心,但这并不意味着他们是涉及自身决策的参与者。

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Evaluating assessment tools of the quality of clinical ethics consultations: a systematic scoping review from 1992 to 2019.评估临床伦理咨询质量的评估工具:1992年至2019年的系统综述。
BMC Med Ethics. 2020 Jul 1;21(1):51. doi: 10.1186/s12910-020-00492-4.
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Disenchantment and clinical ethics.祛魅与临床伦理学。
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本文引用的文献

1
Clinical Ethics Support for Healthcare Personnel: An Integrative Literature Review.为医护人员提供临床伦理支持:一项综合文献综述
HEC Forum. 2017 Dec;29(4):313-346. doi: 10.1007/s10730-017-9325-4.
2
The "Commitment Model" for Clinical Ethics Consultations: Society's Involvement in the Solution of Individual Cases.临床伦理咨询的“承诺模式”:社会参与个体病例的解决方案。
J Clin Ethics. 2015 Winter;26(4):286-96.
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Novel Paths to Relevance: How Clinical Ethics Committees Promote Ethical Reflection.通向相关性的新途径:临床伦理委员会如何促进伦理反思。
HEC Forum. 2016 Sep;28(3):205-16. doi: 10.1007/s10730-015-9291-7. Epub 2015 Aug 7.
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Qualitative analysis of healthcare professionals' viewpoints on the role of ethics committees and hospitals in the resolution of clinical ethical dilemmas.医疗保健专业人员对伦理委员会和医院在解决临床伦理困境中所起作用的观点的定性分析。
HEC Forum. 2015 Mar;27(1):11-34. doi: 10.1007/s10730-014-9258-0.
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Med Health Care Philos. 2008 Mar;11(1):17-25. doi: 10.1007/s11019-007-9102-2. Epub 2007 Oct 2.
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What and who are clinical ethics committees for?临床伦理委员会是为了什么以及为了谁而设立的?
J Med Ethics. 2007 Sep;33(9):497-500. doi: 10.1136/jme.2007.021394.
9
How physicians face ethical difficulties: a qualitative analysis.医生如何面对伦理困境:一项定性分析。
J Med Ethics. 2005 Jan;31(1):7-14. doi: 10.1136/jme.2003.005835.
10
Balancing the perspectives. The patient's role in clinical ethics consultation.平衡各方观点。患者在临床伦理咨询中的角色。
Med Health Care Philos. 2003;6(3):247-54. doi: 10.1023/a:1025973902447.