Currier Hele, Zimmerman Cortney Taylor
Director, Renal and Pheresis Services, Texas Children's Hospital, Houston, TX.
member of ANNA's Gulf Coast Chapter.
Nephrol Nurs J. 2019 May-Jun;46(3):293-336.
Pediatric kidney failure is a relatively rare but devastating medical condition associated with a high degree of disease-related burden, but little is known about children's lived experiences. Finding ways to better understand their experiences can lead to improvement in direct patient care, health-related quality of life (HRQoL), and long-term functioning. Arts in Health (AIH) may be one means of understanding children's lived experiences. A retrospective review of a creative, writing-based AIH project by pediatric patients on hemodialysis was conducted. A qualitative directed-content analysis identified five main themes, including physical shackle, feeling mental and emotional distress, relying on a hemodialysis machine, dealing with problems, and feeling different. This study elucidates the lived experiences of children with chronic kidney failure by validating patients' experiences and highlighting their resilience.
小儿肾衰竭是一种相对罕见但极具破坏性的病症，与之相关的疾病负担程度很高，但对于儿童的实际生活经历却知之甚少。找到更好地了解他们经历的方法可以改善直接的患者护理、与健康相关的生活质量（HRQoL）以及长期功能。健康领域的艺术（AIH）可能是了解儿童实际生活经历的一种方式。对一个由接受血液透析的儿科患者开展的基于写作的创造性AIH项目进行了回顾性研究。定性定向内容分析确定了五个主要主题，包括身体束缚、感到精神和情绪困扰、依赖血液透析机解决问题以及感觉与众不同。本研究通过验证患者的经历并突出他们的恢复力，阐明了慢性肾衰竭儿童的实际生活经历。
