Registry of Older South Australians, South Australian Health and Medical Research Institute, Adelaide, South Australia, Australia.
Division of Health Sciences, University of South Australia, Adelaide, South Australia, Australia.
BMJ Open. 2019 Jun 19;9(6):e026319. doi: 10.1136/bmjopen-2018-026319.
Australia's ageing population puts significant demands on the aged care and healthcare sectors. To monitor the provision of aged care and healthcare services to older people, each government body has an individual data collection system. Together these systems can be the basis for creating the evidence necessary to support future allocation of resources for our ageing community. The Registry of Older South Australians (ROSA) is a cross-sector multidisciplinary (ie, aged care and healthcare) platform built to address the challenges of monitoring people in aged care settings. This protocol describes the ROSA's framework and plans.
A registry to capture 16 000 South Australians/year undergoing an aged care eligibility assessment was designed. ROSA will contain information captured by the Commonwealth and South Australian state Health Authority, linked by two data integrating authorities, and housed on a secured data platform. ROSA will contain information on the sociodemographic, health, function, psychological, social, home and safety assessment and concerns characteristics, aged care services, general health services, and mortality of people receiving aged care services. Registered participants will be prospectively monitored until their death and yearly updates of their aged care and healthcare services information will be added to the registry.
ROSA will longitudinally monitor the services provided to a population that puts costly demands on the state healthcare and aged care systems, identify unwanted variation, and underpin future research. ROSA's expected outputs include an annual report, a research agenda that focuses on high burden conditions and potentially economically impactful questions, educational materials, and risk profiling tools. ROSA was approved by the South Australian Department for Health and Ageing HREC (HREC/17/SAH/125) and the Australian Institute of Health and Welfare HREC (EO2018/2/429).
澳大利亚人口老龄化给老年护理和医疗保健部门带来了巨大压力。为了监测向老年人提供老年护理和医疗保健服务的情况，每个政府机构都有一个单独的数据收集系统。这些系统可以共同为支持我们老龄化社区未来资源分配提供必要的证据。南澳大利亚老年人登记处（ROSA）是一个跨部门多学科（即老年护理和医疗保健）平台，旨在应对监测老年护理环境中人群的挑战。本方案描述了 ROSA 的框架和计划。
设计了一个注册系统，以每年捕获 16000 名接受老年护理资格评估的南澳大利亚人。ROSA 将包含由联邦和南澳大利亚州卫生当局捕获的信息，通过两个数据整合当局进行链接，并存储在一个安全的数据平台上。ROSA 将包含有关社会人口统计学、健康、功能、心理、社会、家庭和安全评估以及关注特征、老年护理服务、一般健康服务以及接受老年护理服务的人的死亡率的信息。注册参与者将被前瞻性监测，直到他们死亡，并每年更新他们的老年护理和医疗保健服务信息到注册处。
ROSA 将对给州医疗保健和老年护理系统带来高成本需求的人群提供的服务进行纵向监测，识别不必要的变化，并为未来的研究提供支持。ROSA 的预期产出包括年度报告、专注于高负担状况和潜在具有经济影响的问题的研究议程、教育材料和风险分析工具。ROSA 已获得南澳大利亚州卫生和老龄化部 HREC（HREC/17/SAH/125）和澳大利亚卫生和福利研究所 HREC（EO2018/2/429）的批准。
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