Woman's and Child's Department, Pediatric Pain and Palliative Care Service, University of Padua, Padova, Italy
Woman's and Child's Department, Neonatal Intensive Care Unit, University of Padua, Padova, Veneto, Italy.
BMJ Support Palliat Care. 2021 Sep;11(3):329-334. doi: 10.1136/bmjspcare-2019-001849. Epub 2019 Jul 19.
Ensure access to perinatal palliative care (PnPC) to all eligible fetuses/infants/parents.
During 12 meetings in 2016, a multidisciplinary work-group (WG) performed literature review (Grading of Recommendations, Assessment, Development and Evaluation (GRADE) method was applied), including the ethical and legal references, in order to propose shared care pathway.
Maternal-Infant Department of Padua's University Hospital.
PnPC eligible population has been divided into three main groups: extremely preterm newborns (first group), newborns with prenatal/postnatal diagnosis of life-limiting and/or life-threatening disease and poor prognosis (second group) and newborns for whom a shift to PnPC is appropriate after the initial intensive care (third group).
The multidisciplinary WG has shared care pathway for these three groups and defined roles and responsibilities.
Prenatal and postnatal management, symptom's treatment, end-of-life care.
The best care setting and the best practice for PnPC have been defined, as well as the indications for family support, corpse management and postmortem counselling, as well suggestion for conflicts' mediation.
PnPC represents an emerging field within the paediatric palliative care and calls for the development of dedicated shared pathways, in order to ensure accessibility and quality of care to this specific population of newborns.
确保所有符合条件的胎儿/婴儿/父母都能获得围产期姑息治疗（PnPC）。
在 2016 年的 12 次会议上，一个多学科工作组（WG）进行了文献回顾（应用了推荐分级评估、制定与评价（GRADE）方法），包括伦理和法律参考，以提出共同护理途径。
帕多瓦大学医院母婴科。
符合 PnPC 条件的人群分为三组：极早产儿（第一组）、产前/产后诊断为生命有限和/或危及生命疾病且预后不良的新生儿（第二组）以及在初始强化治疗后适合转为 PnPC 的新生儿（第三组）。
多学科 WG 为这三组患者制定了共同护理途径，并确定了角色和责任。
围产期管理、症状治疗、临终关怀。
定义了 PnPC 的最佳护理环境和最佳实践，以及家庭支持、尸体管理和死后咨询的指征，以及对冲突调解的建议。
PnPC 是儿科姑息治疗领域的一个新兴领域，需要制定专门的共同途径，以确保为这一特定新生儿群体提供可及性和高质量的护理。
