School of Nursing and Midwifery, Tehran University of Medical Sciences, Tohid Square, Tohid Square, Nosrat St, Tehran, Iran.
Medicine Faculty, Kurdistan University of Medical Sciences, Kurdistan, Iran.
BMC Psychol. 2021 Feb 19;9(1):33. doi: 10.1186/s40359-021-00539-0.
Childbirth is one of the invaluable human experiences and is associated with parental happiness. However, when a child is born with congenital heart disease, it creates emotional and mental distress. As a result, it changes the parents' response to their child birth. Exploring parenthood experiences add to the body of knowledge and reveal new perspectives. In order to make healthcare professionals able to support these children and their families, they should first understand the meaning of this phenomenon. This study aimed to explore the meaning of parenting a child with Congenital Heart Disease in Iran.
A qualitative study was adopted with a conventional content analysis approach and constant comparative analysis. Participants in this study were 17 parents, including parents of children with congenital heart disease who were selected by purposeful sampling method. Semi-structured interviews were used for data collection and continued to data saturation. Data were analyzed via MAXQDA 10 software.
Four categories and twenty three subcategories emerged as meaning of parenting a child with Congenital Heart Disease. Categories include "Emotional breakdown", "The catastrophic burden of care", "Spiritual beliefs of parents" and "The hard road" CONCLUSIONS: Fully understanding the life experience of these families will allow the implementation of targeted health interventions. Hence, by understanding the meaning of parenting a child with Congenital Heart Disease, healthcare professionals can asses parents emotional statues, information and spiritual needs, financial condition, insurance and marital status using CHD standards so that support is individualized, sensitive and time appropriate.
分娩是人类宝贵的经历之一，与父母的幸福感息息相关。然而，当孩子出生时患有先天性心脏病，这会给父母带来情绪和精神上的困扰。因此，这改变了父母对孩子出生的反应。探索父母的经历可以增加知识体系，并揭示新的视角。为了使医疗保健专业人员能够支持这些孩子及其家庭，他们首先应该理解这一现象的意义。本研究旨在探讨伊朗父母养育患有先天性心脏病孩子的意义。
本研究采用定性研究方法，采用常规内容分析方法和恒定比较分析。本研究的参与者是 17 名父母，包括通过目的抽样法选择的患有先天性心脏病的孩子的父母。采用半结构化访谈收集数据，并持续到数据饱和。使用 MAXQDA 10 软件进行数据分析。
得出了养育患有先天性心脏病孩子的意义的四个类别和二十三个亚类别。类别包括“情绪崩溃”、“照顾的灾难性负担”、“父母的精神信仰”和“艰难的道路”。
全面了解这些家庭的生活经历将允许实施有针对性的健康干预措施。因此，通过了解养育患有先天性心脏病孩子的意义，医疗保健专业人员可以根据 CHD 标准评估父母的情绪状态、信息和精神需求、财务状况、保险和婚姻状况，以便提供个性化、敏感和适时的支持。
