a University of Nebraska at Omaha.
b Sage Bionetworks.
Am J Bioeth. 2019 Aug;19(8):3-14. doi: 10.1080/15265161.2019.1619859.
Citizen science models of public participation in scientific research represent a growing area of opportunity for health and biomedical research, as well as new impetus for more collaborative forms of engagement in large-scale research. However, this also surfaces a variety of ethical issues that both fall outside of and build upon the standard human subjects concerns in bioethics. This article provides background on citizen science, examples of current projects in the field, and discussion of established and emerging ethical issues for citizen science in health and biomedical research.
公民科学模型代表了公众参与科学研究的一个不断增长的机会领域，也是推动大规模研究中更具协作性的参与形式的新动力。然而，这也引发了各种各样的伦理问题，这些问题既超出了生物伦理学中标准的人体受试者关注范围，又建立在这些关注之上。本文提供了公民科学的背景知识，该领域当前项目的示例，并讨论了健康和生物医学研究中公民科学的既定和新兴伦理问题。
