Alpert Jordan M, Markham Merry Jennifer, Bjarnadottir Ragnhildur I, Bylund Carma L
Department of Advertising, University of Florida, 2093 Weimer Hall, Gainesville, FL, 32611, USA.
Department of Medicine, Division of Hematology & Oncology, University of Florida, Gainesville, FL, USA.
J Cancer Educ. 2021 Feb;36(1):16-24. doi: 10.1007/s13187-019-01592-5.
Patient-centered communication (PCC) is integral to providing high-quality health care and is recommended to be incorporated during face-to-face consultations. Electronic communication, such as the use of secure messaging (SM) within patient portals, is a popular form of patient-provider communication, but preliminary studies have shown that PCC is rarely utilized by providers in SM. As a consequence, the patient-provider relationship can be negatively affected, especially for cancer patients who have greater electronic health information needs than the general population. Therefore, our objective was to determine the importance of SM to cancer patients and to identify which attributes of PCC are preferred to be incorporated into secure messages. Five focus groups were conducted, comprised of patients with a current or previous cancer diagnosis (three all-female; two all-male). Participants recalled their own experiences and reviewed simulated messages. Three main topics emerged from the thematic analysis: (1) the normalization of SM, (2) SM quality can affect perceptions of care, and (3) patients need guidance. Overall, participants valued the ability to communicate with their care team using SM and indicated that electronic communication may have the potential to have just as big of an impact on a patient's care than in-person communication.
以患者为中心的沟通（PCC）是提供高质量医疗保健不可或缺的一部分，建议在面对面咨询过程中加以采用。电子沟通，例如在患者门户网站内使用安全消息传递（SM），是患者与医疗服务提供者之间一种常见的沟通形式，但初步研究表明，医疗服务提供者在安全消息传递中很少采用以患者为中心的沟通方式。因此，患者与医疗服务提供者之间的关系可能会受到负面影响，尤其是对于那些比普通人群有更大电子健康信息需求的癌症患者。因此，我们的目标是确定安全消息传递对癌症患者的重要性，并确定以患者为中心的沟通的哪些属性更适合纳入安全消息中。我们进行了五个焦点小组讨论，参与者为目前或曾经被诊断患有癌症的患者（三个全女性小组；两个全男性小组）。参与者回忆了自己的经历并查看了模拟消息。主题分析得出了三个主要主题：（1）安全消息传递的常态化，（2）安全消息传递的质量会影响对护理的认知，（3）患者需要指导。总体而言，参与者重视通过安全消息传递与护理团队沟通的能力，并表示电子沟通对患者护理的影响可能与面对面沟通一样大。
