1 Karolinska Institutet, Stockholm, Sweden.
2 Astrid Lindgren Children's Hospital, Stockholm, Sweden.
J Fam Nurs. 2019 Aug;25(3):447-468. doi: 10.1177/1074840719864255. Epub 2019 Jul 25.
Transfer to adult care for adolescents with chronic conditions ought to be determined by transition readiness. The aims of this study were (a) to describe the level of readiness for transition in adolescents with congenital heart disease, (b) to compare adolescents' assessment of transition readiness with their parents' assessments, and (c) to study potential correlates of transition readiness. A total of 157 triads of adolescents aged 14 to 18 years and their parents completed the Readiness for Transition Questionnaire. Adolescents scored higher on overall readiness than their parents. Multivariable analyses revealed that higher levels of adolescents' overall readiness were associated with a less threatening view of the illness, a higher level of empowerment, and with higher mothers' and fathers' overall readiness scores. Adolescents' responsibility scores were positively associated with age and parental adolescent responsibility scores. Parental involvement scores were negatively associated with adolescents' age and positively with the mothers' parental involvement scores. By using a triadic evaluation, the results of the present study significantly extend what is currently known about this population.
青少年的慢性疾病的过渡到成人护理应该由过渡准备情况来决定。本研究的目的是：(a)描述先天性心脏病青少年的过渡准备情况；(b)比较青少年对过渡准备情况的评估与其父母的评估；(c)研究过渡准备情况的潜在相关性。共有 157 个青少年及其父母（年龄在 14 至 18 岁之间）的三人小组完成了《过渡准备问卷》。青少年在整体准备情况方面的得分高于其父母。多变量分析显示，青少年整体准备情况较高与对疾病的威胁看法较低、赋权程度较高以及母亲和父亲的整体准备情况得分较高有关。青少年的责任感得分与年龄呈正相关，与父母的青少年责任感得分呈正相关。父母的参与度得分与青少年的年龄呈负相关，与母亲的父母参与度得分呈正相关。通过使用三方评估，本研究的结果显著扩展了目前对这一人群的了解。
