St. Jude Children's Research Hospital, Memphis, TN, USA.
Indiana University School of Medicine, Indianapolis, IN, USA.
Palliat Med. 2020 Mar;34(3):403-412. doi: 10.1177/0269216319866576. Epub 2019 Jul 26.
Children with serious illness who receive hospice care often interface with nurses who lack training, experience and comfort in the provision of paediatric palliative and hospice care. Hospice nurse preferences for paediatric-specific training are not well known.
To describe the types of paediatric-specific training received and educational content preferred by hospice nurses.
Population-level dissemination of a cross-sectional survey with qualitative analysis of open-ended survey items.
SETTING/PARTICIPANTS: Nurses from 71 community-based hospice organizations across 3 states completed the survey.
An open-ended response was provided by 278/551 (50.5%) survey respondents. A total of 55 respondents provided 58 descriptions of prior paediatric-specific training, including a formal 2-day course ( = 36; 65.5%), on-the-job education ( = 13, 23.6%), online training ( = 5, 9.1%), nursing school ( = 2, 3.6%) and paediatric advanced life support courses ( = 2, 3.6%). A total of 67 respondents described 74 hospice-led educational efforts, largely comprised of a 2-day course ( = 39; 54.2%) or provision of written materials ( = 11; 15.3%). A total of 189 respondents described 258 preferences for paediatric-specific training, with nearly half ( = 93; 49.2%) requesting 'any' or 'all' types of education and the remainder requesting education around medication use ( = 48; 25.4%), symptom assessment/management ( = 32; 16.9%), pain assessment/management ( = 28; 14.8), communication ( = 29; 15.3%) and psychosocial assessment/management ( = 28; 14.8).
Hospice nurses self-report inadequate exposure to educational resources and programs, in conjunction with a strong desire for increased paediatric-specific training. Identification of targetable gaps should inform the development of educational resources, policies and other supportive interventions to improve delivery of care to children and families in the community.
接受临终关怀的重病儿童经常与缺乏儿科姑息治疗和临终关怀提供方面的培训、经验和舒适感的护士打交道。临终关怀护士对儿科特定培训的偏好尚不清楚。
描述临终关怀护士接受的儿科特定培训类型和首选的教育内容。
在三个州的 71 个社区临终关怀组织中的人群层面传播，对开放式调查项目进行定性分析。
设置/参与者：来自三个州的 71 个社区临终关怀组织的 551 名护士中的 278 名完成了调查。
共有 55 名受访者提供了 58 项关于先前儿科特定培训的描述，包括为期两天的正式课程（36 人，占 65.5%）、在职教育（13 人，占 23.6%）、在线培训（5 人，占 9.1%）、护理学校（2 人，占 3.6%）和儿科高级生命支持课程（2 人，占 3.6%）。共有 67 名受访者描述了 74 项由临终关怀主导的教育工作，主要由为期两天的课程（39 人，占 54.2%）或提供书面材料（11 人，占 15.3%）组成。共有 189 名受访者描述了 258 项儿科特定培训的偏好，近一半（93 人，占 49.2%）要求“任何”或“所有”类型的教育，其余要求围绕药物使用（48 人，占 25.4%）、症状评估/管理（32 人，占 16.9%）、疼痛评估/管理（28 人，占 14.8%）、沟通（29 人，占 15.3%）和心理社会评估/管理（28 人，占 14.8%）。
临终关怀护士自我报告在教育资源和项目方面的接触不足，同时强烈希望增加儿科特定培训。确定可靶向的差距应能为教育资源、政策和其他支持性干预措施的制定提供信息，以改善社区中儿童和家庭的护理提供。
