School of Population Health & Environmental Sciences, Faculty of Life Sciences & Medicine, King's College London, London, UK.
Department of Political Science, Universitat Wien, Vienna, Austria.
Health Expect. 2019 Dec;22(6):1223-1230. doi: 10.1111/hex.12948. Epub 2019 Aug 14.
Patient and public involvement (PPI) in health-care commissioning decisions has always been a contentious issue. However, the current moves towards Sustainability and Transformation Partnerships (STPs) in England's NHS are viewed as posing the risk of reducing the impact of current structures for PPI.
To understand how different members in clinical commissioning groups (CCGs) understand PPI as currently functioning in their decision-making practices, and the implications of the STPs for it.
Thematic analysis of 18 semi-structured interviews with CCG governing body voting members (e.g. clinicians and lay members), non-voting governing body members (e.g. Healthwatch representatives) and CCG staff with roles focussed on PPI, recruited from CCGs in South London STPs.
There are contestations amongst CCG members regarding not only what PPI is, but also the role that it currently plays and could play in commissioning decision making in the context of STPs. Three main themes were identified: PPI is 'going out' into the community; PPI as a disruptive power; and PPI as co-production, a 'utopian dream'?
Long-standing issues distinctive to PPI in NHS prioritization decisions are resurfacing with the moves towards STPs, particularly in relation to contradictions between the rhetoric of 'partnership' and reorganizations that foster more top-down control. The interviews reveal pervasive distrusts across a number of levels that are counterproductive to the collaborations upon which STPs rely. And it is argued that such distrust and contestations will continue until a formalized space for PPI in STP priority-setting is created.
患者和公众参与(PPI)在医疗保健委托决策中一直是一个有争议的问题。然而,英国国民保健制度(NHS)目前向可持续发展和转型伙伴关系(STP)的转变被认为存在降低当前 PPI 结构影响力的风险。
了解临床委托组(CCG)的不同成员如何理解当前在其决策实践中发挥作用的 PPI,以及 STP 对其的影响。
对来自伦敦南部 STP 的 CCG 管理机构投票成员(如临床医生和非专业成员)、非投票管理机构成员(如 Healthwatch 代表)以及专注于 PPI 的 CCG 工作人员的 18 次半结构化访谈进行主题分析。
CCG 成员之间不仅对 PPI 是什么存在争议,而且对其当前在 STP 背景下的决策中的作用以及可能发挥的作用也存在争议。确定了三个主要主题:PPI 正在“走向”社区;PPI 作为一种颠覆性力量;以及 PPI 作为共同生产,一种“乌托邦梦想”?
在向 STP 转变的过程中,NHS 优先排序决策中 PPI 特有的长期问题再次浮现,特别是在“伙伴关系”的言论与促进更多自上而下控制的重组之间存在矛盾。访谈揭示了在许多层面上普遍存在的不信任,这对 STP 所依赖的合作产生了适得其反的影响。有人认为,只有在 STP 优先事项设定中为 PPI 创造一个正式的空间,这种不信任和争议才会继续存在。