Matthews Rachel, Papoulias Constantina Stan
National Institute for Health Research (NIHR), Collaboration for Leadership and Applied Health Research and Care (CLAHRC) for Northwest London, Imperial College London, London, United Kingdom.
Health Service and Population Research, King's College London, London, United Kingdom.
Front Sociol. 2019 Apr 24;4:36. doi: 10.3389/fsoc.2019.00036. eCollection 2019.
Policy around patient and public involvement (PPI) in the production, design and delivery of health services, and research remains difficult to implement. Consequently, in the UK and elsewhere, recent years have seen a proliferation of toolkits, training, and guidelines for supporting good practice in PPI. However, such instruments rarely engage with the power asymmetries shaping the terrain of collaboration in research and healthcare provision. Toolkits and standards may tell us little about how different actors can be enabled to reflect on and negotiate such asymmetries, nor on how they may effectively challenge what count as legitimate forms of knowledge and expertise. To understand this, we need to turn our attention to the relational dynamic of collaboration itself. In this paper we present the development of the Exchange Network, an experimental learning space deliberately designed to foreground, and work on this relational dynamic in healthcare research and quality improvement. The Network brings together diverse actors (researchers, clinicians, patients, carers, and managers) for structured "events" which are not internal to particular research or improvement projects but subsist at a distance from these. Such events thus temporarily suspend the role allocation, structure, targets, and other pragmatic constraints of such projects. We discuss how Exchange Network participants make use of action learning techniques to reflect critically on such constraints; how they generate a "knowledge space" in which they can rehearse and test a capacity for dialogue: an encounter between potentially conflictual forms of knowledge. We suggest that Exchange Network events, by explicitly attending to the dynamics and tensions of collaboration, may enable participants to collectively challenge organizational norms and expectations and to seed capacities for learning, as well as generate new forms of mutuality and care.
在卫生服务的生产、设计和提供以及研究中,围绕患者和公众参与(PPI)的政策仍然难以实施。因此,在英国和其他地方,近年来出现了大量支持PPI良好实践的工具包、培训和指南。然而,这些工具很少涉及塑造研究与医疗保健合作领域的权力不对称问题。工具包和标准可能很少告诉我们如何使不同行为者能够反思并协商这种不对称,也很少说明他们如何有效地挑战被视为合法知识和专业形式的内容。要理解这一点,我们需要将注意力转向合作本身的关系动态。在本文中,我们介绍了交流网络的发展情况,这是一个经过精心设计的实验性学习空间,旨在突出并处理医疗保健研究和质量改进中的这种关系动态。该网络将不同的行为者(研究人员、临床医生、患者、护理人员和管理人员)聚集在一起参加结构化的“活动”,这些活动并非特定研究或改进项目内部的活动,而是与这些项目保持一定距离。因此,此类活动暂时中止了此类项目的角色分配、结构、目标和其他实际限制。我们讨论了交流网络的参与者如何利用行动学习技巧来批判性地反思这些限制;他们如何创造一个“知识空间”,在其中可以演练和测试对话能力:这是潜在冲突性知识形式之间的一种相遇。我们认为,通过明确关注合作的动态和紧张关系,交流网络活动可能使参与者能够集体挑战组织规范和期望,并培养学习能力,同时产生新的相互性和关怀形式。