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评价临床试验多媒体以支持西班牙裔癌症患者的信息和决策需求。

An Evaluation of Clinical Trial Multimedia to Support Hispanic Cancer Patients' Informational and Decision-Making Needs.

机构信息

Department of Communication Studies, University of Georgia, Athens, GA, 30602, USA.

School of Communication, University of Miami, Coral Gables, FL, USA.

出版信息

J Cancer Educ. 2021 Feb;36(1):110-117. doi: 10.1007/s13187-019-01606-2.

Abstract

The inclusion of diverse populations in clinical trial research is a social justice imperative. Creating the communicative tools that can support cancer patients across varied cultural backgrounds in processing complex clinical trial information, to achieve informed consent, has been a challenge. This study sought to evaluate specific clinical trial multimedia-a website, four animations, and a decision aid-to meet the decision-making and informational needs of Hispanic patients. The multimedia content was positively evaluated by Hispanic cancer patients. However, the discussions also yielded important steps for culturally adapting these tools to account for particular informational needs and cultural values that would be important to incorporate into these, and future, clinical trial multimedia interventions that target Hispanic populations.

摘要

将不同人群纳入临床试验研究是社会正义的必要条件。创建能够支持不同文化背景的癌症患者处理复杂临床试验信息以实现知情同意的交流工具一直是一个挑战。本研究旨在评估特定的临床试验多媒体 - 一个网站、四个动画和一个决策辅助工具 - 以满足西班牙裔患者的决策和信息需求。西班牙裔癌症患者对多媒体内容给予了积极评价。然而,讨论也产生了一些重要步骤,用于对这些工具进行文化适应性调整,以考虑到特定的信息需求和文化价值观,这些因素对于纳入这些工具以及未来针对西班牙裔人群的临床试验多媒体干预措施都非常重要。

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