青少年和青年癌症患者及其母亲的困扰和适应能力：一项探索性分析。
Distress and resilience among adolescents and young adults with cancer and their mothers: An exploratory analysis.
机构信息
Palliative Care and Resilience Research Program, Center for Clinical and Translational Research, Seattle Children's Research Institute, Seattle, WA, USA.
Cambia Palliative Care Center of Excellence, University of Washington, Seattle, WA, USA.
出版信息
J Psychosoc Oncol. 2020 Jan-Feb;38(1):118-124. doi: 10.1080/07347332.2019.1656317. Epub 2019 Aug 28.
Abstract
The aim of this analysis was to explore intra-family longitudinal relationships in psychosocial well-being among adolescent and young adults (AYAs, M = 17, SD = 2.1) with cancer and their mothers using data from a multi-site, prospective, survey-based study. AYA-mother dyads ( = 14 dyads) completed validated patient reported outcome (PRO) measures of self-perceived resilience [Connor-Davidson resilience scale (CD-RISC-10)] and distress [Kessler-6 psychological distress scale (K6)] at baseline (14-60 days following diagnosis) and follow-up (3-6 months later). Higher AYA distress predicted better maternal resilience, whereas higher maternal distress predicted worse AYA resilience. Thus, processes of resilience between AYAs and their mothers may differ.
摘要
本分析旨在利用来自多地点、前瞻性、基于调查的研究数据，探索青少年和年轻成人（AYA，M=17，SD=2.1）癌症患者及其母亲的心理社会幸福感的家庭内纵向关系。AYA-母亲对子（=14 对子）在基线（诊断后 14-60 天）和随访（3-6 个月后）时完成了经过验证的患者报告结局（PRO）测量，包括自我感知的韧性[Connor-Davidson 韧性量表（CD-RISC-10）]和困扰[Kessler-6 心理困扰量表（K6）]。较高的 AYA 困扰预测了更好的母亲韧性，而较高的母亲困扰则预测了较差的 AYA 韧性。因此，AYA 和他们的母亲之间的韧性过程可能不同。
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1
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Fam Syst Health. 2017 Sep;35(3):341-351. doi: 10.1037/fsh0000281. Epub 2017 May 25.
2
Commentary: Resilience Defined: An Alternative Perspective.评论：韧性的定义：另一种视角。
J Pediatr Psychol. 2016 Jun;41(5):506-9. doi: 10.1093/jpepsy/jsw018. Epub 2016 Mar 24.
3
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4
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5
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6
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8
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9
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J Clin Oncol. 2013 Apr 1;31(10):1329-35. doi: 10.1200/JCO.2011.39.1870. Epub 2013 Jan 28.
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