Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany.
J Eur Acad Dermatol Venereol. 2020 Jan;34(1):174-179. doi: 10.1111/jdv.15940. Epub 2019 Oct 8.
Hidradenitis suppurativa (HS) is a chronic, debilitating inflammatory skin disease. In Germany, there are no population-based data on the epidemiology of HS.
The objective of this study was to examine the occurrence of HS in inpatient as well as in outpatient settings.
We used three data sources for analysing the prevalence, incidence and case-related occurrence of HS in different settings: data of two German statutory health insurance (SHI) companies and hospital discharge data provided by the Federal Statistical Office. The studied period was from 2010 to 2015.
In a representative sample of about 2.3 million insurees (out of 5.9 million total persons) of the SHI DAK-Gesundheit, 791 were diagnosed with HS in 2010. This coding prevalence of 0.03% is in accordance with the data of another SHI (Barmer) on about 9 million total insurees. In 2015, at least 34.7% of incident persons with HS had one potential misdiagnosis in 2014.
This population-based study analyses the prevalence and incidence of HS in Germany. The coding prevalence of 0.03% observed in two independent SHI data sets is lower than expected. The findings of considerable potential misdiagnosis add to the underdiagnosis of HS in general and underline the need for future strategies to early detection and valid diagnosis of HS.
化脓性汗腺炎（HS）是一种慢性、使人虚弱的炎症性皮肤病。在德国，尚无关于 HS 流行病学的基于人群的数据。
本研究旨在检查住院和门诊环境中 HS 的发生情况。
我们使用了三个数据源来分析不同环境中 HS 的患病率、发病率和与病例相关的发生情况：两家德国法定健康保险（SHI）公司的数据和联邦统计局提供的医院出院数据。研究期间为 2010 年至 2015 年。
在 DAK-Gesundheit 的约 230 万参保人中（总计 590 万人）的代表性样本中，2010 年有 791 人被诊断为 HS。这种编码患病率为 0.03%，与另一家 SHI（Barmer）关于总计 900 万参保人的数据相符。2015 年，至少有 34.7%的 HS 新发病例在 2014 年存在一种潜在的误诊。
本基于人群的研究分析了德国 HS 的患病率和发病率。在两个独立的 SHI 数据集观察到的 0.03%的编码患病率低于预期。存在相当多的潜在误诊的发现增加了 HS 总体上的漏诊情况，并强调了需要制定未来的策略来早期发现和有效诊断 HS。
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