Haapala Irja, Carr Ashley, Biggs Simon
School of Social and Political Sciences, University of Melbourne, Melbourne, Victoria, Australia.
School of Applied Educational Science and Teacher Education, University of Eastern Finland, Joensuu, Finland.
Australas J Ageing. 2019 Sep;38 Suppl 2:59-67. doi: 10.1111/ajag.12647.
To examine the overlap between priorities expressed by representatives from national and local campaigning organisations and the views of key voices in relation to dementia.
Semi-structured, in-depth telephone interviews were conducted with 19 representatives from campaigning organisations, including nine countries and six local community initiatives in Australia. Responses were categorised into nine priorities. Views were compared to the voices of people with dementia (n = 19), carers (n = 28), and health-care (n = 21), social work (n = 23) and service professionals (n = 20).
Local groups prioritised user-led decision-making and community normalising agendas. National groups were influenced by service frameworks and increasing public awareness. Professional and carer groups focused on increasing understanding and communication skills while people with dementia valued being a normal part of society.
Future campaigning should use both national and local approaches to changing social relations, through interpersonal connections, advocacy and social mobilisation, to promote a normalising approach to attitude change.
探讨国家和地方竞选组织代表所表达的优先事项与痴呆症相关关键人士观点之间的重叠情况。
对来自竞选组织的19名代表进行了半结构化深度电话访谈，其中包括澳大利亚的9个国家组织和6个地方社区倡议组织。回答被归类为9个优先事项。将这些观点与痴呆症患者（n = 19）、护理人员（n = 28）、医疗保健人员（n = 21）、社会工作者（n = 23）和服务专业人员（n = 20）的观点进行了比较。
地方团体将用户主导的决策和社区常态化议程列为优先事项。国家团体受到服务框架和提高公众意识的影响。专业人员和护理人员团体专注于增进理解和沟通技巧，而痴呆症患者重视成为社会的正常组成部分。
未来的竞选活动应采用国家和地方两种方法来改变社会关系，通过人际关系、宣传和社会动员，以促进态度改变的常态化方法。
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