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痴呆症患者社区护理服务的期望特征和成果:根据客户、服务提供者和政策,什么是重要的?

Desired characteristics and outcomes of community care services for persons with dementia: what is important according to clients, service providers and policy?

作者信息

Low Lee-Fay, White Fiona, Jeon Yun-Hee, Gresham Meredith, Brodaty Henry

机构信息

Dementia Collaborative Research Centre, School of Psychiatry, University of New South Wales, Sydney, New South Wales, Australia.

出版信息

Australas J Ageing. 2013 Jun;32(2):91-6. doi: 10.1111/j.1741-6612.2012.00625.x. Epub 2012 Aug 23.

DOI:10.1111/j.1741-6612.2012.00625.x
PMID:23773247
Abstract

AIM

To examine views of Australian consumers, service providers and policy representatives on important characteristics and outcomes for community care.

METHOD

Interviews, with 32 consumers (one person with dementia (PWD) and 31 carers), 32 service providers and four policy representatives, were analysed thematically.

RESULTS

Outcomes important to consumers and service providers were that PWD can stay at home safely with personalised activities and socialisation; and that carers receive emotional support, respite and continue paid employment. Consumers and service providers said it was important that community care services were flexible and reliable and provided adequate hours of care and there was continuity of appropriate and well-trained staff. Overall responses of policy representatives were congruent with consumers and service providers but did not comprehensively cover the issues.

CONCLUSIONS

Community care policies and service practices need to be re-examined to make sure that they are person-centred and reflect consumer needs, for instance by integrating client and carer services and providing appropriate activities for PWD.

摘要

目的

探讨澳大利亚消费者、服务提供者和政策代表对社区护理重要特征及成果的看法。

方法

对32名消费者(1名痴呆症患者和31名护理人员)、32名服务提供者和4名政策代表进行访谈,并进行主题分析。

结果

对消费者和服务提供者而言重要的成果是,痴呆症患者能够通过个性化活动和社交安全地待在家里;护理人员能得到情感支持、喘息机会并继续从事有薪工作。消费者和服务提供者表示,社区护理服务灵活可靠、提供足够的护理时长以及有合适且训练有素的工作人员持续提供服务很重要。政策代表的总体回应与消费者和服务提供者一致,但未全面涵盖这些问题。

结论

需要重新审视社区护理政策和服务实践,以确保其以个人为中心并反映消费者需求,例如通过整合客户和护理人员服务以及为痴呆症患者提供适当活动。

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