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脑损伤生存质量沟通量表条目库的编制及心理测量学特征。

Development and Psychometric Characteristics of the TBI-QOL Communication Item Bank.

机构信息

Departments of Communication Sciences and Disorders (Dr Cohen and Ms Cook), Psychological and Brain Sciences (Drs Cohen and Tulsky), and Physical Therapy (Dr Tulsky) and Center for Health Assessment Research and Translation (Drs Cohen, Kisala, Boulton, and Tulsky, and Ms Kisala), University of Delaware, Newark; and Department of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor (Dr Carlozzi).

出版信息

J Head Trauma Rehabil. 2019 Sep/Oct;34(5):326-339. doi: 10.1097/HTR.0000000000000528.

DOI:10.1097/HTR.0000000000000528
PMID:31498231
Abstract

OBJECTIVE

To develop an item response theory (IRT)-based patient-reported outcome measure of functional communication for adults with traumatic brain injury (TBI).

SETTING

Five medical centers that were TBI Model Systems sites.

PARTICIPANTS

A total of 569 adults with TBI (28% complicated-mild; 13% moderate; and 58% severe).

DESIGN

Grounded theory-based qualitative item development, large-scale item calibration testing, confirmatory factor analyses, psychometric analyses with graded response model IRT.

MAIN MEASURE

Traumatic Brain Injury-Quality of Life (TBI-QOL) Communication Item Bank, version 1.0.

RESULTS

From an initial pool of 48 items, 31 items were retained in the final instrument based on adequate fit to a unidimensional model and absence of bias across several demographic and clinical subgroupings. The TBI-QOL Communication Item Bank demonstrated excellent score precision (reliability ≥ 0.95) across a wide range of communication impairment levels, particularly for individuals with more severe difficulties. The TBI-QOL Communication Item Bank is available as a full item bank, fixed-length short form, and as a computerized adaptive test.

CONCLUSIONS

The TBI-QOL Communication Item Bank permits precise measurement of patient-reported functional communication after TBI. Future development will validate the instrument against performance-based, clinician-reported, and surrogate-reported assessments.

摘要

目的

开发一种基于项目反应理论(IRT)的创伤性脑损伤(TBI)成人功能性沟通的患者报告结局测量工具。

设置

五个 TBI 模型系统站点的医疗中心。

参与者

共有 569 名 TBI 成人(28%为复杂轻度;13%为中度;58%为重度)。

设计

基于扎根理论的定性项目开发、大规模项目校准测试、验证性因子分析、采用等级反应模型 IRT 的心理测量分析。

主要测量

创伤性脑损伤生活质量(TBI-QOL)沟通项目库,版本 1.0。

结果

从最初的 48 个项目中,根据对单一维度模型的充分拟合和对多个人口统计学和临床亚组的无偏差,最终仪器保留了 31 个项目。TBI-QOL 沟通项目库在广泛的沟通障碍水平上表现出优异的评分精度(可靠性≥0.95),特别是对那些有更严重困难的个体。TBI-QOL 沟通项目库可作为完整的项目库、固定长度的短格式以及计算机自适应测试使用。

结论

TBI-QOL 沟通项目库可精确测量 TBI 后患者报告的功能性沟通。未来的发展将根据基于表现的、临床医生报告的和替代报告的评估来验证该工具。

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Syst Rev. 2025 Jan 21;14(1):18. doi: 10.1186/s13643-024-02722-x.
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Further development in measuring communicative participation: identifying items to extend the applicability of the communicative participation item bank.进一步发展沟通参与的测量:确定项目以扩展沟通参与项目库的适用性。
J Patient Rep Outcomes. 2023 May 26;7(1):49. doi: 10.1186/s41687-023-00586-8.
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Responsiveness of the Traumatic Brain Injury Quality of Life Cognition Banks in Recent Brain Injury.
创伤性脑损伤生活质量认知库在近期脑损伤中的反应性。
Front Hum Neurosci. 2022 Mar 4;16:763311. doi: 10.3389/fnhum.2022.763311. eCollection 2022.
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Clinical Use of PROMIS, Neuro-QoL, TBI-QoL, and Other Patient-Reported Outcome Measures for Individual Adult Clients with Cognitive and Language Disorders.用于认知和语言障碍的个体成年患者的 PROMIS、Neuro-QoL、TBI-QoL 和其他患者报告结局测量的临床应用。
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