Gertrude Namale, Kawuma Rachel, Nalukenge Winifred, Kamacooko Onesmus, Yperzeele Laetitia, Cras Patrick, Ddumba Edward, Newton Robert, Seeley Janet
MRC/UVRI and LSHTM Uganda Research Unit Entebbe Uganda.
Department of Neurology, Faculty of Medicine and Health Sciences, Born Bunge Institute, University of Antwerp Antwerp University Hospital Antwerp Belgium.
Nurs Open. 2019 Aug 4;6(4):1551-1558. doi: 10.1002/nop2.356. eCollection 2019 Oct.
We assessed the burden and experiences of caregivers looking after stroke patients in Kampala, Uganda.
We conducted a qualitative cross-sectional study between May 2018-July 2018 among primary caregivers of stroke patients.
The primary caregiver was defined as the person spending most of the time providing daily care for the stroke patient for at least four months. Purposive sampling was used to consecutively recruit the primary caregivers. In-depth interviews were conducted, and audiotape recorded, and observations were also made. Data were managed using NVIVO 12.0 following thematic approach.
Twenty-five caregivers were included in the analysis with a mean age of 39.3, 10.7. Four themes were identified from the qualitative analysis on caregivers' experiences of looking after stroke patients: taking on new responsibilities, factors that protected caregivers from breaking down, limited resources and experiences with patient outcomes. Our findings highlight the need for interventions to support stroke patients and their caregivers.
我们评估了乌干达坎帕拉照顾中风患者的照料者的负担和经历。
2018年5月至2018年7月期间，我们对中风患者的主要照料者进行了一项定性横断面研究。
主要照料者被定义为在至少四个月的时间里大部分时间为中风患者提供日常护理的人。采用目的抽样法连续招募主要照料者。进行了深入访谈并录音，同时也进行了观察。按照主题方法使用NVIVO 12.0管理数据。
25名照料者纳入分析，平均年龄为39.3岁，标准差为10.7岁。从对照料者照顾中风患者经历的定性分析中确定了四个主题：承担新责任、保护照料者不崩溃的因素、资源有限以及患者预后经历。我们的研究结果凸显了采取干预措施支持中风患者及其照料者的必要性。
