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病态的好奇心?在线问答网站上关于截肢肢体处置的讨论。

Morbid curiosity? Discussion of the disposal of amputated limbs on online question and answer sites.

作者信息

Hanna Esmée

机构信息

Institute of Allied Health Sciences Research, De Montfort University, United Kingdom.

出版信息

Digit Health. 2019 Nov 25;5:2055207619890473. doi: 10.1177/2055207619890473. eCollection 2019 Jan-Dec.

DOI:10.1177/2055207619890473
PMID:31807313
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6880030/
Abstract

Amputation is a growing health issue with implications for the corporeal form and sense of bodily identity. Disposal of the removed limb (the amputate) has historically been suggested to impact on patient adaptation to amputation, although understandings of limb disposal are scarce within existing research. The growth of online question and answer sites has created opportunities for social actors to post and respond to a vast array of topic areas, including those that are seen as morbid or taboo. This paper then explores the discussion of amputate disposal within threads from two popular question and answer sites. Using thematic analysis, the paper examines how perceived ownership of limbs, understanding of the amputate as 'waste' and recourse to grotesque humour are key means by which limb disposal is discussed within these sites. Posters then create a new knowledge around the disposal of limbs, albeit one framed by uncertainty.

摘要

截肢是一个日益严重的健康问题,对身体形态和身体认同感都有影响。虽然现有研究中对肢体处理的理解很少,但历史上一直认为被切除肢体(截肢残肢)的处理会影响患者对截肢的适应。在线问答网站的发展为社会行为者提供了机会,使他们能够发布和回应大量主题领域的问题,包括那些被视为病态或禁忌的话题。本文随后探讨了在两个热门问答网站的帖子中对截肢残肢处理的讨论。通过主题分析,本文研究了对肢体的感知所有权、将截肢残肢理解为“废物”以及诉诸怪诞幽默是在这些网站上讨论肢体处理的关键方式。发帖者随后围绕肢体处理创造了新的知识,尽管这是一种由不确定性构建的知识。

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本文引用的文献

1
Ethics of limb disposal: dignity and the medical waste stockpiling scandal.肢体处理伦理:尊严与医疗废物囤积丑闻。
J Med Ethics. 2019 Sep;45(9):575-578. doi: 10.1136/medethics-2019-105554. Epub 2019 Jul 29.
2
Altruism, solidarity and affect in live kidney donation and breastmilk sharing.活体肾脏捐献和母乳分享中的利他主义、团结和情感。
Sociol Health Illn. 2019 Mar;41(3):553-566. doi: 10.1111/1467-9566.12805. Epub 2018 Aug 28.
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From waste product to blood, brains and narratives: developing a pluralist sociology of contributions to health research.从废物到血液、大脑和叙事:发展健康研究贡献的多元社会学。
Sociol Health Illn. 2019 Mar;41(3):585-600. doi: 10.1111/1467-9566.12715. Epub 2018 Mar 1.
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Ned Tijdschr Geneeskd. 2018;162:D2301.
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Healthcare quality and safety: a review of policy, practice and research.医疗保健质量与安全:政策、实践与研究综述
Sociol Health Illn. 2016 Feb;38(2):198-215. doi: 10.1111/1467-9566.12391. Epub 2015 Dec 11.
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Psychologic adjustment to irreversible vision loss in adults: a systematic review.成人不可逆视力丧失的心理调整:系统评价。
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Lower limb amputation in England: prevalence, regional variation and relationship with revascularisation, deprivation and risk factors. A retrospective review of hospital data.英格兰下肢截肢情况:患病率、地区差异以及与血管再通、贫困和风险因素的关系。医院数据回顾性分析。
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What can "thematic analysis" offer health and wellbeing researchers?“主题分析”能为健康与幸福领域的研究者提供什么?
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Body image and self-esteem in lower-limb amputees.下肢截肢者的身体意象与自尊
PLoS One. 2014 Mar 24;9(3):e92943. doi: 10.1371/journal.pone.0092943. eCollection 2014.
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'You don't need a body to feel a body': phantom limb syndrome and corporeal transgression.
Sociol Health Illn. 2013 Mar;35(3):434-48. doi: 10.1111/j.1467-9566.2012.01498.x. Epub 2012 Aug 16.