J Hosp Palliat Nurs. 2020 Apr;22(2):137-144. doi: 10.1097/NJH.0000000000000628.
This study was conducted to determine neonatal intensive care unit (NICU) nurses' opinions about the palliative care needs of neonates with multiple congenital anomalies. The study sample consisted of the 20 nurses who agreed to participate in the study and worked in the NICU between November and December 2017. A one-to-one interview method was utilized using a semistructured interview form. Written consent was obtained from participants and reconfirmed verbally prior to data collection. In the study, most of the nurses stated that the therapeutic medical treatment should not be started for dying neonates with multiple congenital anomalies. It was also found that nurses did not have enough palliative care knowledge for neonates. The palliative care needs of the neonates with multiple congenital anomalies in NICUs were found to be pain management, infection care, enhancing quality of life by avoiding unnecessary medical practices, skin care, the care of the baby in the ventilator, timely application of the treatment of neonates, and supporting family.
本研究旨在确定新生儿重症监护病房(NICU)护士对患有多种先天性畸形的新生儿的姑息治疗需求的看法。研究样本包括 20 名同意参与 2017 年 11 月至 12 月期间在 NICU 工作的护士。采用一对一访谈方法,使用半结构化访谈表。在收集数据之前,从参与者那里获得了书面同意,并进行了口头重新确认。在研究中,大多数护士表示,不应为患有多种先天性畸形的临终新生儿开始治疗性医疗。还发现护士对新生儿的姑息治疗知识不足。NICU 中患有多种先天性畸形的新生儿的姑息治疗需求被发现是疼痛管理、感染护理、通过避免不必要的医疗实践来提高生活质量、皮肤护理、呼吸机中婴儿的护理、及时应用新生儿治疗以及支持家庭。