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使用语音交互技术获取患有复杂疾病儿童的家庭健康和护理信息:多利益相关方观点

Capturing At-Home Health and Care Information for Children With Medical Complexity Using Voice Interactive Technologies: Multi-Stakeholder Viewpoint.

作者信息

Sezgin Emre, Noritz Garey, Elek Alexander, Conkol Kimberly, Rust Steve, Bailey Matthew, Strouse Robert, Chandawarkar Aarti, von Sadovszky Victoria, Lin Simon, Huang Yungui

机构信息

Research Information Solutions and Innovation, The Abigail Wexner Research Institute, Nationwide Children's Hospital, Columbus, OH, United States.

Department of Pediatrics, Nationwide Children's Hospital, Columbus, OH, United States.

出版信息

J Med Internet Res. 2020 Feb 13;22(2):e14202. doi: 10.2196/14202.

DOI:10.2196/14202
PMID:32053114
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7055855/
Abstract

Digital health tools and technologies are transforming health care and making significant impacts on how health and care information are collected, used, and shared to achieve best outcomes. As most of the efforts are still focused on clinical settings, the wealth of health information generated outside of clinical settings is not being fully tapped. This is especially true for children with medical complexity (CMC) and their families, as they frequently spend significant hours providing hands-on medical care within the home setting and coordinating activities among multiple providers and other caregivers. In this paper, a multidisciplinary team of stakeholders discusses the value of health information generated at home, how technology can enhance care coordination, and challenges of technology adoption from a patient-centered perspective. Voice interactive technology has been identified to have the potential to transform care coordination for CMC. This paper shares opinions on the promises, limitations, recommended approaches, and challenges of adopting voice technology in health care, especially for the targeted patient population of CMC.

摘要

数字健康工具和技术正在改变医疗保健,并对健康和护理信息的收集、使用和共享方式产生重大影响,以实现最佳结果。由于大多数努力仍集中在临床环境中,临床环境之外产生的大量健康信息尚未得到充分利用。对于患有复杂疾病的儿童(CMC)及其家庭来说尤其如此,因为他们经常在家中花费大量时间提供实际医疗护理,并协调多个提供者和其他护理人员之间的活动。在本文中,一个多学科利益相关者团队从以患者为中心的角度讨论了在家中生成的健康信息的价值、技术如何加强护理协调以及技术采用的挑战。语音交互技术已被确定有潜力改变CMC的护理协调。本文分享了关于在医疗保健中采用语音技术的前景、局限性、推荐方法和挑战的观点,特别是针对CMC这一目标患者群体。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/3741/7055855/5ec031f9e0fc/jmir_v22i2e14202_fig2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/3741/7055855/0b95187d52d3/jmir_v22i2e14202_fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/3741/7055855/5ec031f9e0fc/jmir_v22i2e14202_fig2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/3741/7055855/0b95187d52d3/jmir_v22i2e14202_fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/3741/7055855/5ec031f9e0fc/jmir_v22i2e14202_fig2.jpg

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Transl Behav Med. 2020 Aug 7;10(3):606-628. doi: 10.1093/tbm/ibz141.
2
Feasibility of a voice-enabled automated platform for medical data collection: CardioCube.用于医疗数据采集的语音激活自动化平台的可行性:CardioCube。
Int J Med Inform. 2019 Sep;129:388-393. doi: 10.1016/j.ijmedinf.2019.07.001. Epub 2019 Jul 4.
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