Sezgin Emre, Noritz Garey, Lin Simon, Huang Yungui
The Abigail Wexner Research Institute, Nationwide Children's Hospital, Columbus, OH, United States.
Department of Pediatrics, Nationwide Children's Hospital, Columbus, OH, United States.
JMIR Form Res. 2021 May 11;5(5):e25503. doi: 10.2196/25503.
Children with special health care needs (CSHCN) require more than the usual care management and coordination efforts from caregivers and health care providers (HCPs). Health information and communication technologies can potentially facilitate these efforts to increase the quality of care received by CSHCN.
In this study, we aim to assess the feasibility of a voice-enabled medical diary app (SpeakHealth) by investigating its potential use among caregivers and HCPs.
Following a mixed methods approach, caregivers of CSHCN were interviewed (n=10) and surveyed (n=86) about their care management and communication technology use. Only interviewed participants were introduced to the SpeakHealth app prototype, and they tested the app during the interview session. In addition, we interviewed complex care HCPs (n=15) to understand their perception of the value of a home medical diary such as the SpeakHealth app. Quantitative data were analyzed using descriptive statistics and correlational analyses. Theoretical thematic analysis was used to analyze qualitative data.
The survey results indicated a positive attitude toward voice-enabled technology and features; however, there was no strong correlation among the measured items. The caregivers identified communication, information sharing, tracking medication, and appointments as fairly and highly important features of the app. Qualitative analysis revealed the following two overarching themes: enablers and barriers in care communication and enablers and barriers in communication technologies. The subthemes included parent roles, care communication technologies, and challenges. HCPs found the SpeakHealth app to be a promising tool for timely information collection that could be available for sharing information with the health system. Overall, the findings demonstrated a variety of needs and challenges for caregivers of CSHCN and opportunities for voice-enabled, interactive medical diary apps in care management and coordination. Caregivers fundamentally look for better information sharing and communication with HCPs. Health care and communication technologies can potentially improve care communication and coordination in addressing the patient and caregiver needs.
The perspectives of caregivers and providers suggested both benefits and challenges in using the SpeakHealth app for medical note-taking and tracking health events at home. Our findings could inform researchers and developers about the potential development and use of a voice-enabled medical diary app.
有特殊医疗需求的儿童（CSHCN）需要照顾者和医疗服务提供者（HCPs）付出比平常更多的护理管理和协调努力。健康信息和通信技术有可能促进这些努力，以提高CSHCN所接受护理的质量。
在本研究中，我们旨在通过调查其在照顾者和HCPs中的潜在用途，评估一款语音医疗日记应用程序（SpeakHealth）的可行性。
采用混合方法，对CSHCN的照顾者进行访谈（n = 10）并进行调查（n = 86），了解他们的护理管理和通信技术使用情况。只有接受访谈的参与者被介绍了SpeakHealth应用程序原型，他们在访谈过程中测试了该应用程序。此外，我们采访了复杂护理的HCPs（n = 15），以了解他们对诸如SpeakHealth应用程序之类的家庭医疗日记的价值的看法。定量数据使用描述性统计和相关性分析进行分析。理论主题分析用于分析定性数据。
调查结果表明对语音技术及其功能持积极态度；然而，所测量的项目之间没有很强的相关性。照顾者将沟通、信息共享、药物追踪和预约确定为该应用程序相当重要和非常重要的功能。定性分析揭示了以下两个总体主题：护理沟通中的促进因素和障碍以及通信技术中的促进因素和障碍。子主题包括家长角色、护理沟通技术和挑战。HCPs发现SpeakHealth应用程序是一个有前途的工具，可用于及时收集信息，这些信息可用于与卫生系统共享。总体而言，研究结果表明CSHCN的照顾者有各种需求和挑战，以及语音交互式医疗日记应用程序在护理管理和协调方面的机会。照顾者从根本上寻求与HCPs更好地共享信息和沟通。医疗保健和通信技术有可能改善护理沟通与协调，以满足患者和照顾者的需求。
照顾者和提供者的观点表明，使用SpeakHealth应用程序在家中记录医疗笔记和跟踪健康事件既有好处也有挑战。我们的研究结果可以为研究人员和开发者提供有关语音医疗日记应用程序潜在开发和使用的信息。
