乳腺癌患者对数字社交护理平台的偏好。

The preferences of breast cancer patients regarding a digital social care platform.

作者信息

Rafiei Sima, Heidarpoor Peigham, Souri Saber, Nejatifar Zahra, Amerzadeh Mohammad

机构信息

Social Determinants of Health Research Center, Research Institute for Prevention of Non- Communicable Diseases, Qazvin University of Medical Sciences, Qazvin, Iran.

Department of Community Based Education of Health Sciences, School of Medical Education and Learning Technologies, Shahid Beheshti University of Medical Sciences, Tehran, Iran.

出版信息

BMC Womens Health. 2025 May 21;25(1):240. doi: 10.1186/s12905-025-03792-2.

DOI:10.1186/s12905-025-03792-2

PMID:40394589

原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12093778/

Abstract

BACKGROUND

Breast cancer is a multifaceted condition affecting women globally, with patients often facing emotional, psychological, and social challenges. This study explored breast cancer patients' preferences for features of a digital social care platform.

METHODS

A cross-sectional study using Conjoint Analysis (CA), grounded in economic utility theory, was conducted. A Discrete Choice Experiment (DCE) questionnaire was administered to 158 breast cancer patients at a university hospital in Iran between November 2023 and January 2024. Data were analysed using ordered logistic regression in Stata 13.

RESULTS

All platform attributes significantly influenced preferences (P ≤ 0.05). Emotional support had the highest impact (β = 1.132), followed by informational (β = 0.973) and esteem support (β = 0.864). Instructional videos increased the likelihood of choosing a digital platform 2.45 times compared to text-based messages (P < 0.001). Personalized online support was 1.42 times more preferred than generic supportive messages (P < 0.001). Mindfulness affirmations were 1.14 times more preferred than inspirational messages (P < 0.001).

CONCLUSION

Digital tools that prioritize emotional, informational, and esteem support-especially through personalized online support and instructional videos can improve patient engagement and acceptability. These findings support the patient-centred design of digital social care platforms to enhance quality of life for breast cancer patients.

摘要

背景

乳腺癌是一种影响全球女性的多方面疾病，患者常常面临情感、心理和社会挑战。本研究探讨了乳腺癌患者对数字社交护理平台功能的偏好。

方法

采用基于经济效用理论的联合分析（CA）进行横断面研究。2023年11月至2024年1月期间，对伊朗一家大学医院的158名乳腺癌患者进行了离散选择实验（DCE）问卷调查。使用Stata 13中的有序逻辑回归分析数据。

结果

所有平台属性均对偏好有显著影响（P≤0.05）。情感支持的影响最大（β=1.132），其次是信息支持（β=0.973）和自尊支持（β=0.864）。与基于文本的信息相比，教学视频使选择数字平台的可能性增加了2.45倍（P<0.001）。个性化在线支持比一般支持信息更受青睐，前者的偏好程度是后者的1.42倍（P<0.001）。正念肯定语比励志信息更受青睐，前者的偏好程度是后者的1.14倍（P<0.001）。