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乳腺癌患者对数字社交护理平台的偏好。

The preferences of breast cancer patients regarding a digital social care platform.

作者信息

Rafiei Sima, Heidarpoor Peigham, Souri Saber, Nejatifar Zahra, Amerzadeh Mohammad

机构信息

Social Determinants of Health Research Center, Research Institute for Prevention of Non- Communicable Diseases, Qazvin University of Medical Sciences, Qazvin, Iran.

Department of Community Based Education of Health Sciences, School of Medical Education and Learning Technologies, Shahid Beheshti University of Medical Sciences, Tehran, Iran.

出版信息

BMC Womens Health. 2025 May 21;25(1):240. doi: 10.1186/s12905-025-03792-2.

DOI:10.1186/s12905-025-03792-2
PMID:40394589
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12093778/
Abstract

BACKGROUND

Breast cancer is a multifaceted condition affecting women globally, with patients often facing emotional, psychological, and social challenges. This study explored breast cancer patients' preferences for features of a digital social care platform.

METHODS

A cross-sectional study using Conjoint Analysis (CA), grounded in economic utility theory, was conducted. A Discrete Choice Experiment (DCE) questionnaire was administered to 158 breast cancer patients at a university hospital in Iran between November 2023 and January 2024. Data were analysed using ordered logistic regression in Stata 13.

RESULTS

All platform attributes significantly influenced preferences (P ≤ 0.05). Emotional support had the highest impact (β = 1.132), followed by informational (β = 0.973) and esteem support (β = 0.864). Instructional videos increased the likelihood of choosing a digital platform 2.45 times compared to text-based messages (P < 0.001). Personalized online support was 1.42 times more preferred than generic supportive messages (P < 0.001). Mindfulness affirmations were 1.14 times more preferred than inspirational messages (P < 0.001).

CONCLUSION

Digital tools that prioritize emotional, informational, and esteem support-especially through personalized online support and instructional videos can improve patient engagement and acceptability. These findings support the patient-centred design of digital social care platforms to enhance quality of life for breast cancer patients.

摘要

背景

乳腺癌是一种影响全球女性的多方面疾病,患者常常面临情感、心理和社会挑战。本研究探讨了乳腺癌患者对数字社交护理平台功能的偏好。

方法

采用基于经济效用理论的联合分析(CA)进行横断面研究。2023年11月至2024年1月期间,对伊朗一家大学医院的158名乳腺癌患者进行了离散选择实验(DCE)问卷调查。使用Stata 13中的有序逻辑回归分析数据。

结果

所有平台属性均对偏好有显著影响(P≤0.05)。情感支持的影响最大(β=1.132),其次是信息支持(β=0.973)和自尊支持(β=0.864)。与基于文本的信息相比,教学视频使选择数字平台的可能性增加了2.45倍(P<0.001)。个性化在线支持比一般支持信息更受青睐,前者的偏好程度是后者的1.42倍(P<0.001)。正念肯定语比励志信息更受青睐,前者的偏好程度是后者的1.14倍(P<0.001)。

结论

优先提供情感、信息和自尊支持的数字工具——尤其是通过个性化在线支持和教学视频——可以提高患者的参与度和接受度。这些发现支持以患者为中心设计数字社交护理平台,以提高乳腺癌患者的生活质量。

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本文引用的文献

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A mixed methods evaluation of patient perspectives on the implementation of an electronic health record-integrated patient-reported symptom and needs monitoring program in cancer care.一种混合方法评估患者对电子病历集成的患者报告症状和需求监测计划在癌症护理中的实施的看法。
J Patient Rep Outcomes. 2024 Jul 2;8(1):66. doi: 10.1186/s41687-024-00742-8.
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Feasibility of a Health Coach Intervention to Reduce Sitting Time and Improve Physical Functioning Among Breast Cancer Survivors: Pilot Intervention Study.健康教练干预对减少乳腺癌幸存者久坐时间并改善身体机能的可行性:试点干预研究
JMIR Cancer. 2023 Dec 19;9:e49934. doi: 10.2196/49934.
3
Online short videos promoting public breast cancer literacy: a pretest-posttest control group trial on efficiency, attitude, and influencing factors.在线短视频促进公众乳腺癌知识普及:一项关于效率、态度和影响因素的预试验-后试验对照试验
Front Public Health. 2023 Jun 15;11:1198780. doi: 10.3389/fpubh.2023.1198780. eCollection 2023.
4
Patients' Perspectives Regarding Digital Health Technology to Support Self-management and Improve Integrated Stroke Care: Qualitative Interview Study.患者对支持自我管理和改善综合卒中护理的数字健康技术的看法:定性访谈研究。
J Med Internet Res. 2023 Apr 4;25:e42556. doi: 10.2196/42556.
5
Engagement With and Acceptability of Digital Media Platforms for Use in Improving Health Behaviors Among Vulnerable Families: Systematic Review.利用数字媒体平台改善弱势群体家庭健康行为的参与度和可接受性:系统评价。
J Med Internet Res. 2023 Feb 3;25:e40934. doi: 10.2196/40934.
6
A Real-Time Mobile Intervention to Reduce Sedentary Behavior Before and After Cancer Surgery: Pilot Randomized Controlled Trial.一项用于减少癌症手术前后久坐行为的实时移动干预措施:试点随机对照试验
JMIR Perioper Med. 2023 Jan 12;6:e41425. doi: 10.2196/41425.
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Effectiveness of a self-management mobile app on the quality of life of women with breast cancer: a study in a developing country.自我管理型手机应用对乳腺癌患者生活质量的影响:发展中国家的一项研究。
BMC Womens Health. 2022 Nov 11;22(1):446. doi: 10.1186/s12905-022-02020-5.
8
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Estimating the impact of engagement with digital health interventions on patient outcomes in randomized trials.评估参与数字健康干预对随机试验中患者结局的影响。
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