Nguyen-Truong Connie Kim Yen, Leung Jacqueline, Micky Kapiolani
Dr. Nguyen-Truong and Dr. Leung are co-first authors.
Washington State University College of Nursing-Vancouver, Washington, United States.
Asian Pac Isl Nurs J. 2020;4(4):173-182. doi: 10.31372/20190404.1078.
In Oregon in the United States' Pacific Northwest, Native Hawaiians/Pacific Islanders including Micronesian Islanders (MI) substantially grew by 68%; however, research is sparse. This is often due to data aggregation as Asian and Pacific Islanders and community members' reluctance and wariness to participate in research due to a history of unethical research in the Pacific. The MI community experienced miscarriages, stillbirths, and intellectual and developmental disabilities. Organizational MI community leaders expressed a need to explore the voices of MI parent leaders (MIPLs). The purpose of the community-based participatory qualitative descriptive pilot study was to explore the perceptions and experiences of MIPLs with maternal and children's health, the school system, and the influence of culture. A trained MI community health worker recruited eight MIPLs from an urban area of the Pacific northwest in the United States. A group level assessment included illustrative storytelling and is a participant-driven qualitative method that guided data collection and analysis with real-time involvement with MIPL. The discussions lasted for 90 minutes. MIPL shared stories by writing and drawing pictures onto the flip chart papers, transcribed main points, and analyzed the data with researchers. Researchers recorded field notes of the interactions. Researchers debriefed with MIPL to assure trustworthiness and credibility of the findings. MIPL are Compact of Free Association citizens. Their age ranged from 26 to 42 years, have lived in the United States an average of 12.63 years, and most reported having less than $15,000 total household income before taxes. Four main themes were identified: MI cultural identity, English language and MI culture disharmony, zero or delayed prenatal care, and uncertainty for the future of MI children who have disabilities or developmentally delayed as they progress through the school system. Health care providers including nurses and school officials need to have a culturally specific understanding of the MI community and must consider their needs, culture, and language barriers.
在美国太平洋西北部的俄勒冈州，包括密克罗尼西亚岛民（MI）在内的夏威夷原住民/太平洋岛民数量大幅增长了68%；然而，相关研究却很少。这通常是由于数据汇总，以及亚太岛民和社区成员因太平洋地区曾存在不道德研究的历史而不愿且警惕参与研究。密克罗尼西亚岛民社区经历过流产、死产以及智力和发育障碍问题。密克罗尼西亚岛民社区组织的领导人表示有必要探寻密克罗尼西亚岛民家长领袖（MIPL）的声音。这项基于社区的参与式定性描述性试点研究的目的是探索密克罗尼西亚岛民家长领袖对母婴健康、学校系统以及文化影响的看法和经历。一名经过培训的密克罗尼西亚岛民社区卫生工作者从美国太平洋西北部的一个城市地区招募了八名密克罗尼西亚岛民家长领袖。小组层面的评估包括说明性讲故事，这是一种由参与者驱动的定性方法，指导数据收集和分析，并让密克罗尼西亚岛民家长领袖实时参与。讨论持续了90分钟。密克罗尼西亚岛民家长领袖通过在活动挂图纸上书写和绘图来分享故事，记录要点，并与研究人员一起分析数据。研究人员记录互动的实地笔记。研究人员与密克罗尼西亚岛民家长领袖进行汇报以确保研究结果的可信度。密克罗尼西亚岛民家长领袖是自由联合协约国公民。他们的年龄在26岁至42岁之间，平均在美国生活了12.63年，大多数人报告称税前家庭总收入不到15000美元。研究确定了四个主要主题：密克罗尼西亚岛民文化身份、英语与密克罗尼西亚岛民文化的不和谐、零产前护理或延迟产前护理，以及残疾或发育迟缓的密克罗尼西亚岛民儿童在学校系统中成长时对未来的不确定性。包括护士和学校官员在内的医疗保健提供者需要对密克罗尼西亚岛民社区有特定文化的理解，并且必须考虑他们的需求、文化和语言障碍。
