WA Primary Health Alliance, Perth, Western Australia.
Discipline of Psychiatry, University of Western Australia.
Epidemiol Psychiatr Sci. 2020 Feb 24;29:e104. doi: 10.1017/S2045796020000153.
Person-centred care is at the core of a value-based health system. Its transformative potential is to enable and support key policy, planning and service developments across the system even when these go against the self-interest of individual major players. It offers a potent test for decision makers at all levels. It demands responses that are multi-level, empirically grounded, expert-informed and data-driven that must converge on the singularity of individuals in the places that they live. This requires different approaches that recognise, respect and reconcile two necessary but constitutionally disparate perspectives: the bureaucratic, overtly decontextualised, top-down, policy and planning objectives of central governments and the formally complex, dynamic and contextualised experience of individuals in the system. Conflating the latter with the former can lead unwittingly to a pervasive and reductive form of quasi-Taylorism that nearly always creates waste at the expense of value. This has parallel application in the treatment domain where outcomes are non-randomly clustered and partitioned by socioeconomic status, amplifying unwarranted variation by place that is striking in its magnitude and heterogeneity. In this paper, we propose that a combination of (1) relevant, local and sophisticated data planning, collection and analysis systems, (2) more detailed person-centred service planning and delivery and (3) system accountability through co-design and transparent public reporting of health system performance in a manner that is understandable, relevant, and locally applicable are all essential in ensuring planned and provided care is most appropriate to more than merely the 'average' person for whom the current system is built. We argue that only through a greater appreciation of healthcare as a complex adaptive (eco)system, where context is everything, and then utilising planning, analysis and management methodologies that reflect this reality is the way to achieve genuine person-centred care.
以人为本的护理是基于价值的医疗体系的核心。其变革潜力在于使系统内的关键政策、规划和服务的发展成为可能,并为其提供支持,即使这些发展与个别主要参与者的自身利益背道而驰。这对各级决策者都是一个强有力的考验。它要求采取多层次、基于经验、专家知情和数据驱动的应对措施,这些措施必须集中在个体所处环境的独特性上。这需要采取不同的方法,承认、尊重和调和两种必要但在宪法上不同的观点:中央政府的官僚主义、明显非情境化、自上而下的政策和规划目标,以及系统中个体正式的、复杂的、动态的和情境化的体验。将后者与前者混为一谈,可能会导致一种普遍而简化的准泰勒主义形式,这种形式几乎总是以牺牲价值为代价产生浪费。这种情况在治疗领域也有类似的应用,治疗结果会因社会经济地位而出现非随机聚类和划分,从而放大了因地点而产生的不合理的差异,其程度和异质性都非常显著。在本文中,我们提出,结合(1)相关的、当地的和复杂的数据规划、收集和分析系统,(2)更详细的以人为本的服务规划和交付,以及(3)通过共同设计和透明的公共报告系统绩效来实现问责制,以一种可理解、相关和适用于当地的方式,这些都是确保计划和提供的护理最适合于当前系统所针对的“平均”人群之外的人的关键。我们认为,只有通过更好地理解医疗保健作为一个复杂适应(生态)系统,其中背景是一切,然后利用反映这一现实的规划、分析和管理方法,才能实现真正的以人为本的护理。