Macklin Jillian A, Djihanian Natalie, Killackey Tieghan, MacIver Jane
Faculty of Medicine, University of Toronto, Toronto, Ontario, Canada.
Co-Chair HeartLinks, Patient Support Group, Toronto, Ontario, Canada.
CJC Open. 2019 Mar 29;1(2):43-46. doi: 10.1016/j.cjco.2019.01.002. eCollection 2019 Mar.
ngaging atients n are (EPIC) is a local patient engagement initiative at the University Health Network for patients and families who have received care for heart failure, heart transplant, or mechanical circulatory support (left ventricular assist device). Patients and caregivers can engage at 4 different levels, including sharing, consulting, deliberating, and collaborating, depending on their knowledge, experience, and available time. The Engaging Patients In Care framework has 4 priority areas: Care Delivery and Policy, Patient Advocacy, Peer Support, and Research. We have identified key engagement barriers with a discussion of possible solutions. We hope this framework can be adapted as an evidentiary baseline for other heart failure and transplant institutions across Canada.
让患者参与护理（EPIC）是大学健康网络针对心力衰竭、心脏移植或机械循环支持（左心室辅助装置）患者及其家属开展的一项本地患者参与倡议。患者和护理人员可以根据他们的知识、经验和可用时间，在4个不同层面参与，包括分享、咨询、审议和协作。让患者参与护理框架有4个优先领域：护理提供与政策、患者倡导、同伴支持和研究。我们确定了关键的参与障碍，并讨论了可能的解决方案。我们希望这个框架可以作为加拿大其他心力衰竭和移植机构的证据基线。
