CJC Open. 2019 Oct 5;1(6):282-288. doi: 10.1016/j.cjco.2019.09.002. eCollection 2019 Nov.
Research collaborations between non-Indigenous and Indigenous researchers primarily have been led by non-Indigenous researchers with privileged locations in university settings. Recognition of the importance of data sovereignty and control to enable Indigenous self-determination requires building data management and analysis capacities among Indigenous research partners. The Canadian Alliance for Healthy Hearts and Minds First Nations (CAHHM-FN) cohort study, a collaboration of 8 First Nations and researchers at 8 universities, convened a 3-day data management and analysis workshop.
Before the workshop, participating communities were asked to develop research questions of interest regarding data collected as part of CAHHM-FN and forward them to the coordinating team. An agenda was created, circulated, and modified on the basis of community feedback to plan the workshop. The CAHHM coordinating team, an Indigenous researcher, and a non-Indigenous biostatistician planned the workshop to strike balance among Indigenous protocols for engagement, theory concerning Indigenous approaches to statistical analysis, and applied data analysis training.
Fifty participants and coordinating team members convened for the 3-day workshop (22 Indigenous and 28 non-Indigenous people from communities, professors, trainees, and staff). Topics included statistical literacy, hands-on data analysis, data security, and topics in Indigenous health research. Workshop evaluations indicated a high level of satisfaction and enthusiasm to hold similar future workshops.
The Indigenous data workshop was designed to increase capacity for data management and analysis by Indigenous community partners and develop new capacity for non-Indigenous partners and trainees. It achieved this, with enthusiasm from Indigenous community members to conduct future workshops.
非原住民研究人员与原住民研究人员之间的合作主要由在大学环境中占据优势地位的非原住民研究人员主导。认识到数据主权和控制权对于实现原住民自决的重要性，需要培养原住民研究伙伴的数据管理和分析能力。加拿大健康心灵第一民族联盟（CAHHM-FN）队列研究是8个第一民族与8所大学的研究人员之间的合作项目，为此召开了一次为期3天的数据管理和分析研讨会。
在研讨会召开之前，要求参与的社区针对作为CAHHM-FN项目一部分收集的数据，提出感兴趣的研究问题，并将其提交给协调团队。根据社区反馈制定了一份议程，进行了分发并加以修改，以规划此次研讨会。CAHHM协调团队、一名原住民研究人员和一名非原住民生物统计学家共同规划了此次研讨会，以在原住民参与协议、原住民统计分析方法理论和应用数据分析培训之间取得平衡。
50名参与者和协调团队成员参加了为期3天的研讨会（22名原住民和28名来自社区、教授、学员及工作人员的非原住民）。主题包括统计素养、实际数据分析、数据安全以及原住民健康研究中的主题。研讨会评估表明，大家对此次研讨会高度满意，并热衷于举办类似的未来研讨会。
此次原住民数据研讨会旨在提高原住民社区伙伴的数据管理和分析能力，并为非原住民伙伴和学员培养新的能力。它做到了这一点，原住民社区成员也热衷于举办未来的研讨会。
