Public Health Department, University Hospital, Saint-Jacques Hospital, 85 rue Saint-Jacques, 44093, Nantes Cedex, France.
UMR 1246 INSERM SPHERE "MethodS in Patients-centered outcomes and HEalth ResEarch", Universities of Nantes and Tours, Bd Benoni-Goullin, 44200, Nantes, France.
Qual Life Res. 2020 Jul;29(7):1895-1901. doi: 10.1007/s11136-020-02451-3. Epub 2020 Mar 17.
While studies on patients' quality of life (QoL) are numerous, to date few have addressed the issue of what QoL means for doctors and how they use patient-reported QoL. This study aimed to explore how doctors define the concept of "patient QoL" and how they use QoL assessments in clinical practice.
Focus group (FG) interviews were conducted with French hospital doctors and general practitioners. Transcripts of the FGs were explored using inductive thematic and lexical analyses.
Twenty-one clinicians participated in four FGs. They all agreed that QoL was a subjective and unstable concept, different from that of health status. In practice, the assessment of patient QoL was conducted using an intuitive and non-structured approach. Most participants thought that it would give them more confidence in making decisions and provide better patient care. But it was also seen in some cases as putting them in an uncomfortable position. The assessment of QoL requires a favourable work and organizational setting.
Patient QoL provides useful data for clinicians. Yet assessments are made without standardized tools. The use of such tools could be very valuable for some practitioners or in some situations, and a real source of problems for others. These problems could, however, be easily overcome with experience-sharing and training clinicians.
尽管有许多关于患者生活质量（QoL）的研究，但迄今为止，很少有研究涉及医生对 QoL 的定义以及他们如何在临床实践中使用患者报告的 QoL。本研究旨在探讨医生如何定义“患者 QoL”的概念以及他们如何在临床实践中使用 QoL 评估。
对法国医院医生和全科医生进行了焦点小组（FG）访谈。使用归纳主题和词汇分析对 FGs 的记录进行了探讨。
21 名临床医生参加了 4 个 FG。他们都一致认为 QoL 是一个主观且不稳定的概念，与健康状况不同。在实践中，使用直观且非结构化的方法评估患者的 QoL。大多数参与者认为，这将使他们在做出决策时更有信心，并提供更好的患者护理。但在某些情况下，它也会让他们感到不舒服。QoL 的评估需要有利的工作和组织环境。
患者 QoL 为临床医生提供了有用的数据。然而，评估是在没有标准化工具的情况下进行的。对于一些医生或在某些情况下，使用此类工具可能非常有价值，但对于其他医生来说，这可能是一个真正的问题来源。然而，通过经验分享和培训临床医生，这些问题很容易得到解决。
