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公众对捐赠器官用于移植的分配偏好:焦点小组讨论。

Public preferences for the allocation of donor organs for transplantation: Focus group discussions.

机构信息

Institute for Epidemiology, Social Medicine and Health Systems Research, Hannover Medical School, Hannover, Germany.

Center for Health Economics Research Hannover (CHERH), Hannover, Germany.

出版信息

Health Expect. 2020 Jun;23(3):670-680. doi: 10.1111/hex.13047. Epub 2020 Mar 18.

Abstract

BACKGROUND

Deceased donor organs are scarce resources because of a large supply-and-demand mismatch. This scarcity leads to an ethical dilemma, forcing priority-setting of how these organs should be allocated and whom to leave behind.

OBJECTIVE

To explore public preferences for the allocation of donor organs in regard to ethical aspects of distributive justice.

METHODS

Focus groups were facilitated between November and December 2018 at Hannover Medical School. Participants were recruited locally. Transcripts were assessed with content analysis using the deductive framework method. All identified and discussed criteria were grouped according to the principles of distributive justice and reported following the COREQ statement.

RESULTS

Six focus groups with 31 participants were conducted. Overall, no group made a final decision of how to allocate donor organ; however, we observed that not only a single criterion/principle but rather a combination of criteria/principles is relevant. Therefore, the public wants to allocate organs to save as many lives as possible by both maximizing success for and also giving priority to urgent patients considering the best compatibility. Age, waiting time, reciprocity and healthy lifestyles should be used as additional criteria, while sex, financial status and family responsibility should not, based on aspects of equality.

CONCLUSIONS

All participants recognized the dilemma that prioritizing one patient might cause another one to die. They discussed mainly the unclear trade-offs between effectiveness/benefit and medical urgency and did not establish an agreement about their importance. The results suggest a need of preference studies to elucidate public preferences in organ allocation.

摘要

背景

由于供体器官的供应与需求严重不匹配,因此死亡供体器官是稀缺资源。这种稀缺性导致了一个伦理困境,迫使人们优先考虑如何分配这些器官以及将谁留下。

目的

探讨公众对分配供体器官的偏好,以了解分配正义的伦理方面。

方法

2018 年 11 月至 12 月在汉诺威医学院进行了焦点小组讨论。参与者在当地招募。使用演绎框架方法对转录本进行内容分析。根据分配正义的原则,将所有确定和讨论的标准进行分组,并按照 COREQ 声明进行报告。

结果

进行了六组焦点小组讨论,共有 31 名参与者。总体而言,没有一个小组对如何分配供体器官做出最终决定;然而,我们观察到,相关的不仅仅是单一的标准/原则,而是一系列标准/原则的组合。因此,公众希望通过最大化成功和优先考虑紧急患者,同时考虑最佳相容性,来分配器官以挽救尽可能多的生命。基于平等原则,应将年龄、等待时间、互惠和健康生活方式作为附加标准,而不应将性别、财务状况和家庭责任作为标准。

结论

所有参与者都认识到,优先考虑一个患者可能会导致另一个患者死亡的困境。他们主要讨论了有效性/效益和医疗紧急情况之间的不明确权衡,并没有就其重要性达成一致意见。结果表明需要进行偏好研究,以阐明公众在器官分配方面的偏好。

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