Lussier Marie-Thérèse, Kaczorowski Janusz, Girard Magali, Arpin Emmanuelle
Équipe de recherche en soins de première ligne, Centre intégré de santé et de services sociaux de Laval, Laval, Canada.
Département de Médecine de Famille et de Médecine d'Urgence, Faculté de médecine, Université de Montréal, Montréal, Canada.
Health Promot Int. 2020 Dec 1;35(6):1570-1576. doi: 10.1093/heapro/daaa015.
Volunteers have been extensively used in health promotion programmes. However, they have been less frequently involved in the research process. In its most recent iterations, the Cardiovascular Health Awareness Program (CHAP) integrated volunteers (i) to facilitate CHAP sessions with participating patients for data collection and (ii) to evaluate the intervention. Drawing on the patient and public involvement literature, our research team included volunteers in the data collection and evaluation of CHAP sessions as part of the programme's implementation in the province of Quebec (Canada). We sought volunteers' formal feedback through individual online and phone interviews and through focus groups for each of the four projects conducted in Quebec. We found that volunteers provide valuable insight on the research protocol as well as patient needs. Their feedback led to several modifications to the research protocol and procedures of subsequent CHAP sessions. Changes included involving volunteers at earlier stages of the research process, adding more learning modules and practice sessions during the volunteer training and defining research priorities according to patient needs. Our methodology of engaging volunteers in the research process was useful to gain important and unique insight on patient needs and for future programme planning to modify the research process.
志愿者已广泛应用于健康促进项目。然而，他们较少参与研究过程。在其最新的版本中，心血管健康意识项目（CHAP）纳入了志愿者，（i）以便与参与项目的患者共同推动CHAP会议以进行数据收集，以及（ii）对干预措施进行评估。借鉴患者及公众参与的文献，我们的研究团队将志愿者纳入CHAP会议的数据收集和评估工作，这是该项目在加拿大魁北克省实施的一部分。我们通过个人在线和电话访谈以及针对在魁北克开展的四个项目分别组织的焦点小组，征求志愿者的正式反馈。我们发现，志愿者对研究方案以及患者需求提供了宝贵的见解。他们的反馈促使对后续CHAP会议的研究方案和程序进行了多项修改。这些变化包括让志愿者在研究过程的更早阶段参与进来，在志愿者培训期间增加更多学习模块和实践环节，并根据患者需求确定研究重点。我们让志愿者参与研究过程的方法，有助于获取有关患者需求的重要且独特的见解，并为未来修改研究过程的项目规划提供帮助。
