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要是时光能够倒流就好了——丧亲父母的悔恨。

If only I could turn back time-Regret in bereaved parents.

机构信息

Department of Pediatrics, Division of Oncology and Hematology, Charité -Universitätsmedizin Berlin, Augustenburger Platz 1, Berlin, Berlin, 13353, Germany.

Department Business & Psychology, University of Applied Sciences Europe - Campus Berlin, Dessauer Str. 3-5, Berlin, Berlin, 10963, Germany.

出版信息

Pediatr Blood Cancer. 2020 Jun;67(6):e28265. doi: 10.1002/pbc.28265. Epub 2020 Mar 20.

Abstract

INTRODUCTION

Regret about loss is one of the most intense types of regret experienced in life. Little is known about the bereavement regret of parents whose child has died of cancer. Although knowledge about parents' experiences after their child's death is vital for supporting these families, parents' regret is mostly hidden from the treating clinical staff. This study aimed to explore these parents' regret themes and their impact on their future lives.

METHODS

An explorative questionnaire was sent to bereaved parents who lost a child to cancer. A total of 26 parents responded to the questionnaire. Data were analyzed using the constant comparative method.

RESULTS

Regret experiences were shared by almost all participants. The focus of regret issues include parenting and interaction with the child, reflection on existing values, dealing with the disease, and neglecting the remaining siblings. The regret experience had an impact on prioritizing values, future lifestyle and contacts.

CONCLUSIONS

Regret seems to be a general phenomenon among bereaved parents and strongly influences the grieving process, in the sense of reflecting on past experiences to reorient for future actions. As this study was explorative, it is significant toward deepening the understanding of bereavement regret in future. These insights are crucial when working with affected families to help them decide important issues they can care about now and will not regret later.

摘要

介绍

失落之悔是人生中经历过的最强烈的悔恨类型之一。对于因癌症而失去孩子的父母的丧亲之悔,人们知之甚少。尽管了解父母在孩子去世后的经历对于支持这些家庭至关重要,但父母的悔恨大多被治疗临床工作人员所掩盖。本研究旨在探讨这些父母的悔恨主题及其对未来生活的影响。

方法

向因癌症失去孩子的丧亲父母发送了一份探索性问卷。共有 26 位父母对问卷做出了回应。使用恒定性比较方法对数据进行了分析。

结果

几乎所有参与者都分享了悔恨的经历。悔恨问题的焦点包括育儿和与孩子的互动、对现有价值观的反思、疾病的处理以及忽视其余的兄弟姐妹。这种悔恨的经历对优先考虑价值观、未来的生活方式和联系产生了影响。

结论

遗憾似乎是丧亲父母的普遍现象,强烈影响着悲伤的过程,即反思过去的经历,为未来的行动重新定位。由于本研究具有探索性,因此对于今后深入了解丧亲之悔具有重要意义。这些观点在与受影响的家庭合作时至关重要,可以帮助他们决定现在可以关心的重要问题,而不会在以后后悔。

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