Departments of Pediatrics and
Departments of Pediatrics and.
Pediatrics. 2020 Apr;145(Suppl 1):S81-S92. doi: 10.1542/peds.2019-1895K.
Systems of care emphasize parent-delivered intervention for children with autism spectrum disorder (ASD). Meanwhile, multiple studies document psychological distress within these parents. This pilot longitudinal randomized controlled trial compared the parent-implemented Early Start Denver Model (P-ESDM) to P-ESDM plus mindfulness-based stress reduction (MBSR) for parents. We evaluated changes in parent functioning during active treatment and at follow-up.
Participants included children (<36 months old) with autism spectrum disorder and caregivers. Participants were randomly assigned to P-ESDM only ( = 31) or P-ESDM plus MBSR ( = 30). Data were collected at baseline, midtreatment, the end of treatment, and 1, 3, and 6 months posttreatment. Multilevel models with discontinuous slopes were used to test for group differences in outcome changes over time.
Both groups improved during active treatment in all subdomains of parent stress (β = -1.42, -1.25, -0.92; < 0.001), depressive symptoms, and anxiety symptoms (β = -0.62 and -0.78, respectively; < 0.05). Parents who received MBSR had greater improvements than those receiving P-ESDM only in parental distress and parent-child dysfunctional interactions (β = -1.91 and -1.38, respectively; < 0.01). Groups differed in change in mindfulness during treatment (β = 3.15; < .05), with P-ESDM plus MBSR increasing and P-ESDM declining. Treatment group did not significantly predict change in depressive symptoms, anxiety symptoms, or life satisfaction. Differences emerged on the basis of parent sex, child age, and child behavior problems.
Results suggest that manualized, low-intensity stress-reduction strategies may have long-term impacts on parent stress. Limitations and future directions are described.
照护系统强调由父母为自闭症谱系障碍(ASD)儿童提供干预。与此同时,多项研究记录了这些父母的心理困扰。本试点纵向随机对照试验比较了父母实施的早期强化丹佛模式(P-ESDM)与 P-ESDM 加正念减压疗法(MBSR)对父母的效果。我们评估了积极治疗和随访期间父母功能的变化。
参与者包括自闭症谱系障碍儿童(<36 个月)及其照顾者。参与者被随机分配到仅接受 P-ESDM(n=31)或 P-ESDM 加 MBSR(n=30)。数据在基线、治疗中期、治疗结束时以及治疗后 1、3 和 6 个月收集。使用具有不连续斜率的多层模型来检验组间随时间变化的结果变化差异。
两组在积极治疗期间均在父母压力(β=-1.42、-1.25、-0.92;<0.001)、抑郁症状和焦虑症状(β=-0.62 和-0.78;<0.05)的所有子领域均有所改善。接受 MBSR 的父母在父母困扰和亲子功能障碍互动方面的改善大于仅接受 P-ESDM 的父母(β=-1.91 和-1.38;<0.01)。在治疗过程中,两组的正念变化不同(β=3.15;<0.05),P-ESDM 加 MBSR 增加,而 P-ESDM 减少。治疗组并未显著预测抑郁症状、焦虑症状或生活满意度的变化。基于父母性别、儿童年龄和儿童行为问题出现了差异。
结果表明,标准化、低强度的减压策略可能对父母压力产生长期影响。描述了限制因素和未来方向。