Heiney Sue P, Donevant Sara B, Arp Adams Swann, Parker Pearman D, Chen Hongtu, Levkoff Sue
College of Nursing, University of South Carolina, Columbia, SC, United States.
College of Nursing, University of Arkansas for Medical Sciences, Little Rock, AR, United States.
JMIR Aging. 2020 Apr 3;3(1):e17142. doi: 10.2196/17142.
Mobile health (mHealth) apps are dramatically changing how patients and providers manage and monitor chronic health conditions, especially in the area of self-monitoring. African Americans have higher mortality rates from heart failure than other racial groups in the United States. Therefore, self-management of heart failure may improve health outcomes for African American patients.
The aim of the present study was to determine the feasibility of using an mHealth app, and explore the outcomes of quality of life, including self-care maintenance, management, and confidence, among African American patients managing their condition after discharge with a diagnosis of heart failure.
Prior to development of the app, we conducted qualitative interviews with 7 African American patients diagnosed with heart failure, 3 African American patients diagnosed with cardiovascular disease, and 6 health care providers (cardiologists, nurse practitioners, and a geriatrician) who worked with heart failure patients. In addition, we asked 6 hospital chaplains to provide positive spiritual messages for the patients, since spirituality is an important coping method for many African Americans. These formative data were then used for creating a prototype of the app, named Healthy Heart. Specifically, the Healthy Heart app incorporated the following evidence-based features to promote self-management: one-way messages, journaling (ie, weight and symptoms), graphical display of data, and customized feedback (ie, clinical decision support) based on daily or weekly weight. The educational messages about heart failure self-management were derived from the teaching materials provided to the patients diagnosed with heart failure, and included information on diet, sleep, stress, and medication adherence. The information was condensed and simplified to be appropriate for text messages and to meet health literacy standards. Other messages were derived from interviews conducted during the formative stage of app development, including interviews with African American chaplains. Usability testing was conducted over a series of meetings between nurses, social workers, and computer engineers. A pilot one-group pretest-posttest design was employed with participants using the mHealth app for 4 weeks. Descriptive statistics were computed for each of the demographic variables, overall and subscales for Health Related Quality of Life Scale 14 (HQOL14) and subscales for the Self-Care of Heart Failure Index (SCHFI) Version 6 using frequencies for categorical measures and means with standard deviations for continuous measures. Baseline and postintervention comparisons were computed using the Fisher exact test for overall health and paired t tests for HQOL14 and SCHFI questionnaire subscales.
A total of 12 African American participants (7 men, 5 women; aged 51-69 years) diagnosed with heart failure were recruited for the study. There was no significant increase in quality of life (P=.15), but clinically relevant changes in self-care maintenance, management, and confidence were observed.
An mHealth app to assist with the self-management of heart failure is feasible in patients with low literacy, low health literacy, and limited smartphone experience. Based on the clinically relevant changes observed in this feasibility study of the Healthy Heart app, further research should explore effectiveness in this vulnerable population.
移动健康(mHealth)应用程序正在极大地改变患者和医疗服务提供者管理和监测慢性健康状况的方式,尤其是在自我监测领域。在美国,非裔美国人的心力衰竭死亡率高于其他种族群体。因此,心力衰竭的自我管理可能会改善非裔美国患者的健康状况。
本研究的目的是确定使用一款移动健康应用程序的可行性,并探讨生活质量的结果,包括自我护理维持、管理和信心,这些结果来自于诊断为心力衰竭后出院的非裔美国患者对自身病情的管理。
在开发该应用程序之前,我们对7名诊断为心力衰竭的非裔美国患者、3名诊断为心血管疾病的非裔美国患者以及6名与心力衰竭患者合作的医疗服务提供者(心脏病专家、执业护士和一名老年病医生)进行了定性访谈。此外,我们请6位医院牧师为患者提供积极的精神信息,因为灵性是许多非裔美国人重要的应对方式。然后,这些形成性数据被用于创建一款名为“健康心脏”的应用程序原型。具体而言,“健康心脏”应用程序纳入了以下基于证据的功能以促进自我管理:单向信息、日志记录(即体重和症状)、数据图形显示以及基于每日或每周体重的定制反馈(即临床决策支持)。关于心力衰竭自我管理的教育信息来自于提供给诊断为心力衰竭的患者的教材,包括饮食、睡眠、压力和药物依从性方面的信息。这些信息经过浓缩和简化,以适合短信形式并符合健康素养标准。其他信息来自于应用程序开发形成阶段进行的访谈,包括对非裔美国牧师的访谈。通过护士、社会工作者和计算机工程师之间的一系列会议进行了可用性测试。采用单组前后测设计,参与者使用该移动健康应用程序4周。对每个人口统计学变量、健康相关生活质量量表14(HQOL14)的总体及子量表以及心力衰竭自我护理指数(SCHFI)第6版的子量表进行描述性统计,分类测量采用频率,连续测量采用均值及标准差。使用Fisher精确检验计算总体健康的基线和干预后比较,使用配对t检验计算HQOL14和SCHFI问卷子量表的比较。
共招募了12名诊断为心力衰竭的非裔美国参与者(7名男性,5名女性;年龄51 - 69岁)参与该研究。生活质量没有显著提高(P = 0.15),但在自我护理维持、管理和信心方面观察到了临床相关变化。
一款协助心力衰竭自我管理的移动健康应用程序对于低识字率、低健康素养和智能手机经验有限的患者是可行的。基于在“健康心脏”应用程序的这项可行性研究中观察到的临床相关变化,进一步的研究应探索其在这一弱势群体中的有效性。