Bougrab Nassira, Li Dadong, Trachtman Howard, Sherman Scott, Thornton Rachel, Langford Aisha T
NYU Clinical and Translational Science Institute Recruitment and Retention Unit, NYU Langone Health, New York, NY, USA.
Clinic Informatics, Regeneron Pharmaceutics, Inc., Tarrytown, NY, USA.
J Clin Transl Sci. 2019 Nov 25;4(1):69-72. doi: 10.1017/cts.2019.433. eCollection 2020 Feb.
In 2017, the NYU Clinical and Translational Science Institute's Recruitment and Retention Unit created a Patient Advisory Council for Research (PACR) to provide feedback on clinical trials and health research studies. We collaborated with our clinical research informatics team to generate a random sample of patients, based on the International Classification of Diseases, Tenth Revision codes and demographic factors, for invitation via the patient portal. This approach yielded in a group that was diverse with regard to age, race/ethnicity, sex, and health conditions. This report highlights the benefits and limitations of using an electronic health record-based strategy to identify and recruit members for a PACR.
2017年，纽约大学临床与转化科学研究所的招募与留用部门成立了患者研究咨询委员会（PACR），以提供关于临床试验和健康研究的反馈。我们与临床研究信息学团队合作，根据国际疾病分类第十版编码和人口统计学因素，生成患者随机样本，通过患者门户网站进行邀请。这种方法产生了一个在年龄、种族/族裔、性别和健康状况方面具有多样性的群体。本报告强调了使用基于电子健康记录的策略来识别和招募PACR成员的益处和局限性。
