King Abdullah International Medical Research Center (KAIMRC), Riyadh, Saudi Arabia.
King Saud Bin Abdulaziz University of Health Sciences (KSAU-HS), Riyadh, Saudi Arabia.
Cancer Control. 2020 Jan-Dec;27(1):1073274820917210. doi: 10.1177/1073274820917210.
Despite rapid and successful development in pediatric cancer treatment, many ethical challenges remain. These challenges have been, and continue to be, the subject of much research, but few qualitative studies have explored the views of nurses, especially in the Middle East. This study, therefore, seeks to fill a knowledge gap in this area and to better understand the concerns of nurses-particularly those in Saudi Arabia and the Middle East. Face-to-face, in-depth interviews were conducted with 17 male and female nurses working in pediatric units at 2 hospitals in Saudi Arabia to explore their views on the ethical challenges in caring for children with cancer. All interviews were recorded and transcribed, then line-by-line encoded, merged, and categorized into themes. Our results show that pediatric cancer is perceived as being "different" from other diseases, and from cancer in adults. Nurses are an integral part of the medical care team and are aware of the importance of their role, as well as the special relationships that they develop with the children. Consent is mandatory and necessary and can be signed by any parent. Assent is important when children become able to give it. Pediatric cancer is seen as a different disease by nurses for various reasons. Their roles and relationships with children and families pose many challenges. Though parental consent and child assent are essential, nurses' collaboration is important for shared decision-making. Our study paves the way for broader studies to understand the concerns of nurses and other health-care providers about treating children with pediatric cancer.
尽管儿科癌症治疗取得了快速和成功的发展，但仍存在许多伦理挑战。这些挑战一直是，并且继续是，许多研究的主题，但很少有定性研究探讨护士的观点，特别是在中东。因此，这项研究旨在填补这一领域的知识空白，并更好地了解护士的关注点——特别是在沙特阿拉伯和中东的护士。本研究在沙特阿拉伯的 2 家医院的儿科病房工作的 17 名男女护士进行了面对面的深入访谈，以探讨他们对照顾癌症儿童的伦理挑战的看法。所有访谈都进行了录音和转录，然后逐行编码、合并和分类为主题。我们的研究结果表明，儿科癌症被认为与其他疾病以及成人癌症不同。护士是医疗护理团队的重要组成部分，他们意识到自己角色的重要性，以及与儿童建立的特殊关系。同意是强制性的，必要的，并且可以由任何父母签署。当儿童能够给予同意时，同意是重要的。儿科癌症由于各种原因被护士视为一种不同的疾病。他们的角色以及与儿童和家庭的关系带来了许多挑战。尽管父母同意和儿童同意是必不可少的，但护士的合作对于共同决策也很重要。我们的研究为更广泛的研究奠定了基础，以了解护士和其他医疗保健提供者对治疗儿科癌症儿童的关注。
