Institute for Bioethics and Health Policy, University of Miami Miller School of Medicine, Miami, USA.
Yearb Med Inform. 2020 Aug;29(1):26-31. doi: 10.1055/s-0040-1701966. Epub 2020 Apr 17.
Contemporary bioethics was fledged and is sustained by challenges posed by new technologies. These technologies have affected many lives. Yet health informatics affects more lives than any of them. The challenges include the development and the appropriate uses and users of machine learning software, the balancing of privacy rights against the needs of public health and clinical practice in a time of Big Data analytics, whether and how to use this technology, and the role of ethics and standards in health policy. Historical antecedents in statistics and evidence-based practice foreshadow some of the difficulties now faced, but the scope and scale of these challenges requires that ethics, too, be brought to scale in parallel, especially given the size of contemporary data sets and the processing power of new computers. Fortunately, applied ethics affords a variety of tools to help identify and rank applicable values, support best practices, and contribute to standards. The bioethics community can in partnership with the informatics community arrive at policies that promote the health sciences while reaffirming the many and varied rights that patients expect will be honored.
当代生物伦理学是由新技术带来的挑战而发展和维持的。这些技术已经影响了许多人的生活。然而,健康信息学比它们中的任何一个都更能影响人们的生活。这些挑战包括开发机器学习软件以及适当的使用和使用者、在大数据分析时代平衡隐私权与公共卫生和临床实践的需求、是否以及如何使用这项技术,以及伦理和标准在卫生政策中的作用。统计学和循证实践的历史先例预示着现在面临的一些困难,但这些挑战的范围和规模要求伦理也与之平行扩展,特别是考虑到当代数据集的规模和新型计算机的处理能力。幸运的是,应用伦理学提供了多种工具来帮助识别和排序适用的价值观,支持最佳实践,并有助于制定标准。生物伦理学界可以与信息学界合作,制定促进健康科学的政策,同时重申患者期望得到尊重的各种权利。