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Web-Based Platform vs Genetic Counselors in Educating Patients About Carrier Results From Exome Sequencing.基于网络的平台与遗传咨询师在向患者讲解外显子组测序携带者结果方面的比较。
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2
Web Platform vs In-Person Genetic Counselor for Return of Carrier Results From Exome Sequencing: A Randomized Clinical Trial.网页平台与现场遗传咨询师在传递外显子组测序携带者结果方面的比较:一项随机临床试验。
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3
Impact of Receiving Secondary Results from Genomic Research: A 12-Month Longitudinal Study.接受基因组研究二次结果的影响:一项为期12个月的纵向研究。
J Genet Couns. 2018 Jun;27(3):709-722. doi: 10.1007/s10897-017-0172-x. Epub 2017 Nov 22.
4
Projecting the Supply and Demand for Certified Genetic Counselors: a Workforce Study.预测认证遗传咨询师的供需情况:一项劳动力研究。
J Genet Couns. 2018 Feb;27(1):16-20. doi: 10.1007/s10897-017-0158-8. Epub 2017 Oct 20.
5
Video-based educational intervention associated with improved stroke literacy, self-efficacy, and patient satisfaction.基于视频的教育干预与提高中风知识水平、自我效能感及患者满意度相关。
PLoS One. 2017 Mar 23;12(3):e0171952. doi: 10.1371/journal.pone.0171952. eCollection 2017.
6
Development and evaluation of a patient education video promoting pneumococcal vaccination.促进肺炎球菌疫苗接种的患者教育视频的开发与评估
Patient Educ Couns. 2017 May;100(5):1024-1027. doi: 10.1016/j.pec.2016.12.025. Epub 2016 Dec 28.
7
Developing and assessing the utility of a You-Tube based clinical genetics video channel for families affected by inherited tumours.为受遗传性肿瘤影响的家庭开发并评估一个基于YouTube的临床遗传学视频频道的效用。
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Development and preliminary evaluation of an online educational video about whole-genome sequencing for research participants, patients, and the general public.为研究参与者、患者和普通公众制作的关于全基因组测序的在线教育视频的开发与初步评估。
Genet Med. 2016 May;18(5):501-12. doi: 10.1038/gim.2015.118. Epub 2015 Sep 3.
9
Are physicians prepared for whole genome sequencing? a qualitative analysis.医生们为全基因组测序做好准备了吗?一项定性分析。
Clin Genet. 2016 Feb;89(2):228-34. doi: 10.1111/cge.12626. Epub 2015 Jul 7.
10
Measuring genetic knowledge: a brief survey instrument for adolescents and adults.测量遗传知识:一种针对青少年和成年人的简短调查问卷工具。
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用户对基于网络的基因组学教育视频的参与度以及对设计可扩展的患者教育材料的启示。

User engagement with web-based genomics education videos and implications for designing scalable patient education materials.

作者信息

Wynn Julia, Wei Wei, Li Xinhang, So Yat S, Bakken Suzanne, Weng Chunhua, Chung Wendy K

机构信息

Department of Pediatrics, Columbia University Irving Medical Center, New York, NY.

Ms. Wynn and Dr. Wei contributed equally to this work b Dr. Chung and Dr. Weng contributed equally to this work.

出版信息

AMIA Annu Symp Proc. 2020 Mar 4;2019:923-932. eCollection 2019.

PMID:32308889
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7153116/
Abstract

Genomic medicine has created an urgent need for scalable genomic education. One promising approach is self-guided learning platforms. Understanding how these platforms are used is critical to guide their effective development and implementation. This study contributes a log-based method to study user engagement with online genomic educational videos among participants in a genomic screening study. We collected baseline demographics, logged participant usage and compared pre- and post-education genomic knowledge. Participants (N=390) who chose website access differed from those who declined access (N=81) and were more likely to be non-Latino, English speaking, younger, and have higher educational attainment. Only 45% who accessed the website viewed at least one video. The average video exposure time was 12 minutes. Longer exposure was not associated with an improvement in the user's genomic knowledge. Our study and future studies of user analytics should be used to guide the development of effective, scalable genomic education methods.

摘要

基因组医学引发了对可扩展基因组学教育的迫切需求。一种有前景的方法是自我引导式学习平台。了解这些平台的使用方式对于指导其有效开发和实施至关重要。本研究贡献了一种基于日志的方法,用于研究基因组筛查研究参与者对在线基因组教育视频的用户参与度。我们收集了基线人口统计学数据,记录了参与者的使用情况,并比较了教育前后的基因组知识。选择访问网站的参与者(N = 390)与拒绝访问的参与者(N = 81)不同,前者更有可能是非拉丁裔、说英语、更年轻且受教育程度更高。访问网站的人中只有45%观看了至少一个视频。视频的平均观看时长为12分钟。观看时长较长与用户基因组知识的提高并无关联。我们的研究以及未来关于用户分析的研究应用于指导有效且可扩展的基因组学教育方法的开发。