Verity Danielle, Eccles Fiona J R, Boland Amanda, Simpson Jane
Division of Health Research, Lancaster University, Lancaster LA1 4YT, UK.
Division of Health Research, Lancaster University, Lancaster LA1 4YT, UK.
J Neurol Sci. 2020 Jul 15;414:116841. doi: 10.1016/j.jns.2020.116841. Epub 2020 Apr 17.
Stigma is a known correlate of well-being for many neurological conditions. Perceived control is also an important variable in models of adaptation to living with a health condition. The purpose of this study was to investigate whether the perception of control mediates the relationship between stigma and well-being in people with Parkinson's disease.
Two hundred and twenty-nine individuals completed quantitative measures of stigma and perceived control, and a full exploration of the concept of well-being (including health-related quality of life, depression, anxiety, stress and positive affect). A series of mediation models investigated whether perceived control mediated the relationship between stigma and each measure of well-being.
Mediational regression analyses indicated that the perception of control mediated the relationship between stigma and health-related quality of life, depression and positive affect. Perceived control did not, however, mediate the relationship between stigma and anxiety nor between stigma and stress.
These findings suggest that in people with Parkinson's disease, perceived control may play an important role in explaining the relationship between stigma and some aspects of well-being. Both stigma and perceived control should be considered within clinical and everyday environmental settings for individuals with Parkinson's disease. Interventions which focus on both reducing stigma and increasing perceived control are outlined.
对于许多神经系统疾病而言，耻辱感是一个与幸福感相关的已知因素。感知控制也是适应健康状况模型中的一个重要变量。本研究的目的是调查感知控制是否在帕金森病患者的耻辱感与幸福感之间的关系中起中介作用。
229名个体完成了耻辱感和感知控制的定量测量，并对幸福感概念进行了全面探索（包括与健康相关的生活质量、抑郁、焦虑、压力和积极情绪）。一系列中介模型研究了感知控制是否在耻辱感与每种幸福感测量之间的关系中起中介作用。
中介回归分析表明，感知控制在耻辱感与与健康相关的生活质量、抑郁和积极情绪之间的关系中起中介作用。然而，感知控制并未在耻辱感与焦虑之间的关系中起中介作用，也未在耻辱感与压力之间的关系中起中介作用。
这些发现表明，在帕金森病患者中，感知控制可能在解释耻辱感与幸福感某些方面之间的关系中起重要作用。对于帕金森病患者，在临床和日常环境中都应考虑耻辱感和感知控制。概述了同时关注减少耻辱感和增加感知控制的干预措施。
