School of Nursing, University of Washington, Seattle, Washington, D.C., USA.
Public Health Sciences and Member Clinical Research Divisions, Fred Hutchinson Cancer Research Center, Seattle, Washington, D.C., USA.
J Psychosoc Oncol. 2021;39(1):1-16. doi: 10.1080/07347332.2020.1745987. Epub 2020 May 5.
The purpose of this study was to examine the feasibility and short-term impact of a 5-session fully manualized, group-delivered cancer parenting education program to diagnosed parents or surrogate parents with a school-age child.
Single group, pre-post-test design with intent to treat analysis.
A total of 16 parents completed the program who were diagnosed within 12 months with non-metastatic cancer of any type (Stages 0-III), read and wrote English, had a child 5-17 years old who knew the parent's diagnosis.
Assessments occurred at baseline and at 2 months post-baseline on standardized measures of parental depressed mood, anxiety, parenting self-efficacy, parenting quality, parenting skills and child behavioral-emotional adjustment.
FINDINGS/RESULTS: The program was feasible and well accepted: 16/18 (89%) of the enrolled participants were included in the intent to treat analysis. Program staff were consistently positive and enthusiastic about the demonstrated skills they observed in group attendees during the group-delivered sessions, including the emergence of support between attendees. Outcomes on all measures improved between baseline and post-intervention; changes were statistically significant on measures of parents' anxiety, parents' self-efficacy, parents' skills, and parenting quality.
The group-delivered Enhancing Connections cancer parenting program has potential to improve behavioral-emotional outcomes on standardized measures of skills and emotional adjustment in parents, parent-surrogates and children. Future testing is warranted.
After a brief training, a fully manualized cancer parenting program can enhance parenting competencies and parent-reported child outcomes.
本研究旨在检验 5 节全手工、小组授课的癌症家长教育计划对确诊为患有癌症的父母或其替代父母（孩子为学龄儿童）的可行性和短期影响。
采用单组、前后测试设计，意向治疗分析。
共有 16 名父母完成了该计划，他们在 12 个月内被诊断患有任何类型的非转移性癌症（0-III 期），能够阅读和书写英语，有一个 5-17 岁的孩子，且孩子知晓家长的诊断。
评估在基线时和基线后 2 个月进行，使用标准化的父母抑郁情绪、焦虑、育儿自我效能感、育儿质量、育儿技能和儿童行为情感调整量表进行评估。
结果/发现：该计划具有可行性且受到广泛欢迎：18 名入组参与者中有 16 名（89%）被纳入意向治疗分析。项目工作人员对他们在小组授课中观察到的小组参与者所展示的技能一直持积极和热情的态度，包括参与者之间的支持关系的出现。所有测量指标在基线和干预后均有所改善；父母焦虑、父母自我效能感、父母技能和育儿质量的测量指标变化具有统计学意义。
小组授课的增强联系癌症育儿计划有潜力改善标准化技能和情绪调整测量指标上父母、父母代理人和儿童的行为情感结果。未来需要进一步的测试。
经过简短的培训，一个全手工的癌症育儿计划可以增强育儿能力和父母报告的儿童结果。
