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安乐死立法背景下的过度安全?保障措施和平等机会

Too much safety? Safeguards and equal access in the context of voluntary assisted dying legislation.

机构信息

Centre for Health Equity, Melbourne School of Population and Global Health, University of Melbourne, Level 4, 207 Bouverie St, Melbourne, VIC, 3010, Australia.

出版信息

BMC Med Ethics. 2020 May 13;21(1):38. doi: 10.1186/s12910-020-00483-5.

DOI:10.1186/s12910-020-00483-5
PMID:32404097
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7222560/
Abstract

BACKGROUND

In June 2019, the Australian state of Victoria joined the growing number of jurisdictions around the world to have legalised some form of voluntary assisted dying. A discourse of safety was prominent during the implementation of the Victorian legislation.

MAIN TEXT

In this paper, we analyse the ethical relationship between legislative "safeguards" and equal access. Drawing primarily on Ruger's model of equal access to health care services, we analyse the Victorian approach to voluntary assisted dying in terms of four dimensions: horizontal equity, patient agency, high quality care, and supportive social norms. We argue that some provisions framed as safeguards in the legislation create significant barriers to equal access for eligible patients.

CONCLUSIONS

While safety is undoubtedly ethically important, we caution against an overemphasis on safeguarding in voluntary assisted dying legislation given the implications for equal access.

摘要

背景

2019 年 6 月,澳大利亚维多利亚州加入了全球越来越多的司法管辖区的行列,将某种形式的自愿协助死亡合法化。在维多利亚州立法的实施过程中,安全问题是一个突出的话题。

主要文本

在本文中,我们分析了立法“保障”与平等准入之间的伦理关系。主要借鉴鲁格的卫生保健服务平等准入模式,我们从四个方面分析了维多利亚州自愿协助死亡的做法:横向公平、患者代理、高质量护理和支持性社会规范。我们认为,立法中作为保障措施的一些规定,为符合条件的患者平等准入制造了重大障碍。

结论

虽然安全无疑在伦理上很重要,但我们警告说,在自愿协助死亡立法中,过于强调保障措施可能会对平等准入产生影响。

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本文引用的文献

1
Justice and public participation in universal health coverage: when is tiered coverage unfair and who should decide?全民健康覆盖中的公平与公众参与:分层覆盖何时不公平以及应由谁来决定?
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'This is uncharted water for all of us': challenges anticipated by hospital clinicians when voluntary assisted dying becomes legal in Victoria.“这对我们所有人来说都是未知的领域”:维多利亚州自愿协助死亡合法化时,医院临床医生预计会面临的挑战。
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General practitioner knowledge and practice in relation to unintended pregnancy in the Grampians region of Victoria, Australia.澳大利亚维多利亚州格兰扁地区全科医生关于意外怀孕的知识与实践。
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Regulating voluntary assisted dying in Australia: some insights from the Netherlands.澳大利亚对自愿协助死亡的监管:来自荷兰的一些见解。
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Is the exclusion of psychiatric patients from access to physician-assisted suicide discriminatory?将精神病人排除在接受医生协助自杀的范围之外是否具有歧视性?
J Med Ethics. 2019 Dec;45(12):817-820. doi: 10.1136/medethics-2019-105546. Epub 2019 Aug 28.
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Restricting conversations about voluntary assisted dying: implications for clinical practice.限制关于自愿协助死亡的对话:对临床实践的影响。
BMJ Support Palliat Care. 2020 Mar;10(1):105-110. doi: 10.1136/bmjspcare-2019-001887. Epub 2019 Aug 7.
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Institutional refusal to offer assisted dying: A response to Shadd and Shadd.机构拒绝提供协助死亡服务:对 Shadd 和 Shadd 的回应。
Bioethics. 2019 Oct;33(8):970-972. doi: 10.1111/bioe.12641. Epub 2019 Aug 6.
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Discussing Voluntary Assisted Dying.讨论自愿协助死亡。
J Law Med. 2018 Dec;26(2):454-463.
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Marginalized Canadians may lack information about end-of-life options.边缘化的加拿大人可能缺乏有关临终选择的信息。
CMAJ. 2018 Dec 17;190(50):E1487-E1488. doi: 10.1503/cmaj.109-5692.
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Aust Health Rev. 2018 Dec;42(6):616-620. doi: 10.1071/AH18199.