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应对新冠疫情的虚拟儿童临终关怀院:苏格兰的经验

A Virtual Children's Hospice in Response to COVID-19: The Scottish Experience.

作者信息

Ellis Kirsteen, Lindley Lisa C

机构信息

Head of Quality and Care Assurance | Joint Virtual Hospice Lead, Children's Hospices Across Scotland, Canal Court, Edinburgh, UK.

Associate Professor | Nightingale Endowed Faculty Fellow, College of Nursing, University of Tennessee, Knoxville, Knoxville, Tennessee, USA.

出版信息

J Pain Symptom Manage. 2020 Aug;60(2):e40-e43. doi: 10.1016/j.jpainsymman.2020.05.011. Epub 2020 May 15.

DOI:10.1016/j.jpainsymman.2020.05.011
PMID:32416232
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7228698/
Abstract

This case report describes a pediatric hospice provider in Scotland and their experience implementing a telehospice program in response to COVID-19. Children's Hospices Across Scotland (CHAS) is the only provider of pediatric hospice care in the entire of Scotland, and we describe their experience offering pediatric telehospice. CHAS had strategically planned to implement a telehospice program, but COVID-19 accelerated the process. The organization evaluated its pediatric clinical and wrap-around hospice services and rapidly migrated them to a virtual environment. They creatively added new services to meet the unique needs of the entire family, who were caring for a child at end of life during COVID-19. CHAS's experience highlights the planning and implementing processes of telehospice with key lessons learned, while acknowledging the challenges inherent in using technology to deliver hospice care.

摘要

本病例报告描述了苏格兰的一家儿科临终关怀服务机构及其在应对新冠疫情时实施远程临终关怀项目的经历。苏格兰儿童临终关怀机构(CHAS)是苏格兰唯一的儿科临终关怀服务提供商,我们在此讲述他们提供儿科远程临终关怀的经验。CHAS此前已制定了实施远程临终关怀项目的战略计划,但新冠疫情加速了这一进程。该机构评估了其儿科临床及全方位临终关怀服务,并迅速将这些服务迁移至虚拟环境。他们创新性地增加了新服务,以满足在新冠疫情期间照顾临终儿童的整个家庭的独特需求。CHAS的经验突出了远程临终关怀的规划和实施过程以及关键经验教训,同时也认识到利用技术提供临终关怀服务所固有的挑战。

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本文引用的文献

1
Defining Provider-Prioritized Domains of Quality in Pediatric Home-Based Hospice and Palliative Care: A Study of the Ohio Pediatric Palliative Care and End-of-Life Network.界定儿科居家舒缓疗护中以提供者为优先的质量范畴:俄亥俄州儿科舒缓疗护与临终关怀网络的研究。
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BMC Palliat Care. 2016 Nov 17;15(1):94. doi: 10.1186/s12904-016-0167-7.
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Home telehealth and paediatric palliative care: clinician perceptions of what is stopping us?家庭远程医疗和儿科姑息治疗:临床医生认为我们受阻的原因是什么?
BMC Palliat Care. 2014 Jun 16;13:29. doi: 10.1186/1472-684X-13-29. eCollection 2014.
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A systematic review of the evidence base for telehospice.远程安宁疗护的证据基础系统评价。
Telemed J E Health. 2012 Jan-Feb;18(1):38-47. doi: 10.1089/tmj.2011.0061. Epub 2011 Nov 15.
6
Demonstration of facial communication of emotion through telehospice videophone contact.通过远程临终关怀可视电话联系展示面部情感交流。
Telemed J E Health. 2011 Jun;17(5):399-401. doi: 10.1089/tmj.2010.0190. Epub 2011 Apr 14.
7
Telehospice: reasons for slow adoption in home hospice care.远程临终关怀:居家临终关怀护理采用率低的原因
J Telemed Telecare. 2009;15(4):187-90. doi: 10.1258/jtt.2009.080911.
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