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工作、生活与追求幸福:自闭症青年成人的职业及心理社会成果

Work, living, and the pursuit of happiness: Vocational and psychosocial outcomes for young adults with autism.

作者信息

Lord Catherine, McCauley James B, Pepa Lauren A, Huerta Marisela, Pickles Andrew

机构信息

University of California, Los Angeles, USA.

Weill Cornell Medicine, USA.

出版信息

Autism. 2020 Oct;24(7):1691-1703. doi: 10.1177/1362361320919246. Epub 2020 May 20.

DOI:10.1177/1362361320919246
PMID:32431163
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7541415/
Abstract

It is important to better understand how adults with autism are functioning in adulthood. Studies that have tracked individuals across the lifespan can help identify developmental factors influence differences in adult outcomes. The present study examines the independence, well-being, and functioning of 123 adults that have been closely followed since early childhood. Autism diagnosis and cognitive assessments were given frequently throughout childhood and during adulthood. We examined differences between adults who had received an autism diagnosis at some point with higher cognitive abilities (Ever ASD-High IQ) and lower cognitive abilities (Ever ASD-Low IQ), as well as adults who never received a diagnosis of autism in the course of the study (Never ASD). We found that autistic features specifically related to adaptive skills and friendships, and verbal intelligence related to work outcomes. In many ways, the Never ASD group had similar outcomes compared to the ASD groups. However, adults with ASD tended to have lower well-being and fewer positive emotions. Families played a major role in supporting adults with and without ASD at all intellectual levels. The findings suggest that realistic ways of increasing independence need to be developed by working with adults and their families, while acknowledging the contribution of individual differences in mental health, intelligence and autism symptoms across neurodevelopmental disorders.

摘要

更好地了解成年自闭症患者在成年期的功能状况非常重要。追踪个体一生的研究有助于识别影响成人结局差异的发育因素。本研究调查了123名从幼儿期就开始被密切跟踪的成年人的独立性、幸福感和功能状况。在整个童年期和成年期都频繁进行自闭症诊断和认知评估。我们研究了在某个时间点被诊断为自闭症且认知能力较高(曾患自闭症-高智商)和认知能力较低(曾患自闭症-低智商)的成年人之间的差异,以及在研究过程中从未被诊断为自闭症的成年人(从未患自闭症)之间的差异。我们发现,自闭症特征与适应技能和友谊特别相关,而语言智力与工作成果相关。在许多方面,从未患自闭症组与自闭症组的结局相似。然而,患有自闭症的成年人往往幸福感较低,积极情绪较少。在所有智力水平上,家庭在支持患有和未患有自闭症的成年人方面都发挥了重要作用。研究结果表明,需要通过与成年人及其家庭合作来开发提高独立性的现实方法,同时承认心理健康、智力和自闭症症状方面的个体差异对神经发育障碍的影响。

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